- Hereditary Angioedema
- Interviews
Linda's interview
Do you already have a diagnosis? How long did it take you to get it?
Yes I havet sjögren syndrome, Bechterews and IBS
For what medical specialties have you been treated? What has been the most useful specialty for your?
I havent started treatment yet
What has been the most useful thing for you so far?
Good doctor and support from family and friends
What have been your biggest difficulties?
Stress
How has your social and family environment reacted? Have your social or family relationships changed?
Not many understand my pain and my difficulties, and people can say things like 'whats wrong with you this time? Its always something with you'. And it hurts to hear things like that. Its like I want to be sick, witch is soo wrong. All I want is to be normal. I think that Ive been sick for a long time, but now I finally get some answers and diagnose.
What things have you stopped doing?
Planning and say yes to things in the future. I never Know how Im gonna be that day.
What do you think about the future?
I worry about if anyone would like to marry me or if im gonna loose friends. I also think that I Will never be able to work 100 %
So far, which years have been the best years in your life? What have you done during them?
Hard to tell..
What would you like to do if you didn’t have your condition?
I would travel, work, start a family
If you had to describe your life in a sentence, what would it be?
Few good days, but when they come, I enjoy them
Finally, what advice would you give to a person in a similar situation?
Get a good doctor and stay away from people that dont understand and people that hurts you
