19

Is it easy to find a partner and/or maintain relationship when you have Antiphospholipid / Hughes Syndrome?

People with experience in Antiphospholipid / Hughes Syndrome give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Antiphospholipid / Hughes Syndrome. What are the possible difficulties in having a relationship?

Couple and Antiphospholipid / Hughes Syndrome

Is it easy to find a partner and/or maintain a relationship when you have Antiphospholipid / Hughes Syndrome?


Antiphospholipid Syndrome (APS), also known as Hughes Syndrome, is a chronic autoimmune disorder that affects the blood's ability to clot properly. It can lead to a variety of health complications, including blood clots, pregnancy complications, and organ damage. Living with APS can present unique challenges, and it is natural to wonder how it may impact your ability to find and maintain a romantic relationship.


Challenges in finding a partner:


When it comes to finding a partner, having APS may introduce some additional challenges. It is important to remember that everyone's experience is unique, and while APS may pose certain obstacles, it does not define your worth or ability to form meaningful connections.


One potential challenge is the need for open and honest communication about your condition. APS is a chronic illness that requires ongoing management and medical care. It is crucial to find a partner who is understanding, supportive, and willing to educate themselves about the condition. This may require patience and understanding on both sides.


Another challenge may be the impact of APS on your physical and emotional well-being. Fluctuating symptoms, such as fatigue, pain, and mood swings, can affect your ability to engage in social activities or maintain a consistent routine. This may require finding a partner who is flexible and understanding of your limitations.


Maintaining a relationship:


Once you have found a partner, maintaining a healthy and fulfilling relationship requires ongoing effort and understanding. Here are some tips that may help:


1. Open communication: Regularly communicate with your partner about your condition, symptoms, and any changes in your health. This will help them understand your needs and provide necessary support.


2. Education: Encourage your partner to learn about APS, its symptoms, and treatment options. This will enable them to better understand your experiences and be more supportive.


3. Support system: Build a strong support system that includes your partner, healthcare professionals, and friends/family. Having a network of people who understand and support you can make a significant difference in managing APS and maintaining a healthy relationship.


4. Self-care: Prioritize self-care and manage your condition effectively. By taking care of yourself physically and emotionally, you can minimize the impact of APS on your relationship.


5. Adaptability: Recognize that APS symptoms can vary over time. Be adaptable and understanding of the challenges that may arise. Flexibility and patience are key in maintaining a strong relationship.


6. Seek professional help: If needed, consider seeking professional help from therapists or counselors who specialize in chronic illness or relationship issues. They can provide guidance and support tailored to your specific situation.


Conclusion:


While having Antiphospholipid Syndrome may introduce certain challenges in finding and maintaining a romantic relationship, it is important to remember that love and understanding can overcome many obstacles. By being open, communicative, and supportive of each other, it is possible to build a strong and fulfilling relationship. Remember that you are not defined by your condition, and there are partners out there who will appreciate and love you for who you are.


Diseasemaps
5 answers
The only difficulty, other then normal relationship woes, is finding someone that can accept you for who you are, and understand your possible limitations.

Posted May 18, 2017 by Tauren 2100
You need live a normal lifestyle

Posted Oct 30, 2017 by Denise Hampson 2000
APS is not a death sentance. It is up to the individuals involved to make life work.

Posted Feb 3, 2018 by Lhrlovesmar 3550
It's as easy as it is for anyone else, unless you have a partner who has an issue with the problems caused by it.

Posted Aug 17, 2022 by gloria_kazan 7450

Couple and Antiphospholipid / Hughes Syndrome

Antiphospholipid / Hughes Syndrome life expectancy

What is the life expectancy of someone with Antiphospholipid / Hughes Syndr...

9 answers
Celebrities with Antiphospholipid / Hughes Syndrome

Celebrities with Antiphospholipid / Hughes Syndrome

2 answers
Is Antiphospholipid / Hughes Syndrome hereditary?

Is Antiphospholipid / Hughes Syndrome hereditary?

7 answers
Is Antiphospholipid / Hughes Syndrome contagious?

Is Antiphospholipid / Hughes Syndrome contagious?

8 answers
Natural treatment of Antiphospholipid / Hughes Syndrome

Is there any natural treatment for Antiphospholipid / Hughes Syndrome?

7 answers
ICD9 and ICD10 codes of Antiphospholipid / Hughes Syndrome

ICD10 code of Antiphospholipid / Hughes Syndrome and ICD9 code

8 answers
Living with Antiphospholipid / Hughes Syndrome

Living with Antiphospholipid / Hughes Syndrome. How to live with Antiphosph...

8 answers
Antiphospholipid / Hughes Syndrome diet

Antiphospholipid / Hughes Syndrome diet. Is there a diet which improves the...

9 answers

World map of Antiphospholipid / Hughes Syndrome

Find people with Antiphospholipid / Hughes Syndrome through the map. Connect with them and share experiences. Join the Antiphospholipid / Hughes Syndrome community.

Stories of Antiphospholipid / Hughes Syndrome

ANTIPHOSPHOLIPID / HUGHES SYNDROME STORIES
Antiphospholipid / Hughes Syndrome stories
Hi my name is Tracy I'm 49 yrs old .. Just over 2 yrs ago I woke at 5am with cramp in my calf wasn't able to weight bare on it so gp told me to rest.. 2 days later it swelled up and was red n painful so husband took me to A&E had blood done came bk p...
Antiphospholipid / Hughes Syndrome stories
I miscarried 3 times before my doctor decided to see why my babies were dying inside of me. The third pregnancy lasted 20 weeks. It was the baby girl I longed for and I was devastated. I was diagnosed in 1992 but we waited 6 years to try again. I was...
Antiphospholipid / Hughes Syndrome stories
I've been struggling with a lot of symptoms since the early teens. No doctor believed me until I got my first blood clot at 18. I got diagnosed in march 2016.
Antiphospholipid / Hughes Syndrome stories
I had my first experience with a blood clot and 1999. It was behind my left me. I've been ended up with multiple pes throughout my lungs. I felt like I was going to die. Fast forward to 2006 and 6 miscarriages later. I found out that I was pregnant. ...
Antiphospholipid / Hughes Syndrome stories
Had a stroke back in 1997. Had the diagnose in 2003. Thinking back my symptoms started back in the 1980's. Numb left foot causing problems walking or standing for longer periods. It turned out that I had a large cloth in the artery to the leg. Had ...

Tell your story and help others

Tell my story

Antiphospholipid / Hughes Syndrome forum

ANTIPHOSPHOLIPID / HUGHES SYNDROME FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map