Help us to help more people
  2. Arnold Chiari
  3. Advice
I truly wish I could say that we have had alot of support from family, friends or the public ( even her doctors ) but sadly this is just not true !
by Kathleen
The Ann Conroy Trust charity
by Annabelle Neale
normal life
by
Anti inflammatory melds along with neuropathy meds
by Charyl Turner
Turmeric 450mg daily fights the inflammation.
by Christol Kasse-Leonard
Finding a hobby that makes ME happy
by Janel Price
That my Dr listens to me as far as me asking for additional testing.
by Maria
my family fighting for me
by shannon
Ice packs are gold!!!!
by Sandy
Never giving up , keep pushing foward
by Samantha Sasser
having a structured schedule with eating
by Amy
Knowing my limits.....and respecting them
by Nicole
Pills pills and more pills
by Tomas Norrman
No strenuous workouts, no amusement park rides, no gymnastics
by 1stBoo
Alternative therapies: acupuncture, massage, and diet.
by Courtney
We Are Warriors..Sisters and Brothers To the end.
by debra Ferry
Take account that Chiari is a disorder for life
by Marisol Morales-Vazquez
Having family/friends that understand and validate your illness
by Mindy
Setting up a local support group - https://www.facebook.com/groups/eds.shropshire/ & other Facebook groups
by N C
My log cabin deep in the woods where I can suffer, be well, eat well or like a pig and generally unwind alone.
by Doug
Vimovo helps dull the pain
by Tara
Take one day at a time!
by Gwen
The surgeons for saving my life
by Leilani
Don't over do it.
by Diane
Don't over do it.
by Diane
Savella helps my pain
by Alicia
Physical therapy
by Lynda Naclerio
Better Stress Management
by Angela
Friends,where would I be without the help and love of my friends ds thank you all so very much for being here with me I love you all
by Frances
My friends that, I see are the things that keep me going.
by Andrea
Get something that you can squeeze (or throw) during painful or stressful moments. I go with a really squishy plush bunnie. That poor bunny gets the bejezus squeezed out of him.
by Ruth Crocker
Decompression Surgery
by Julie Lang
Air conditioner
by Sarah
I want to help others fight!
by Julie
A lot of quiet and pacing
by Amelie Avoine
VP shunt placement
by APRIL KLASEN
Eating a healthy diet, having an ideal healthy weight, and exercising daily.
by Tina
I love my mum she helped me through everything she helped me survive hell
by Elisha
Prayer
by Melissa
Homeopathic and Naturopathy
by Meg
my youngest son has type 1 dm, had sx for a chiari malformation, tethered cord, has mild CP, and mitochondrial disorder
by Ms. DL
Working and do everything the most normal way as possible.
by Yanira
No hacer esfuerzos
by Belen
Do things that make you happy. You have to phyc yourself out and not focus on the pain.
by Hollie
Keeping myself busy. Not focusing on what's wrong.
by Randi McFarland
Laxatives, exercise, sleep
by Abbie Lambert
TPN
by Julie Calvert
Durante los momentos que son pocos me siento bien lo aprovecho a hacer todo lo que puedo hacer en ese momento
by Luz
Special pillow
by Kim
God! If it wasn't for my faith and my relationship with God, I honestly don't think I'd feel as good as I do!!
by Heather C.