- Aspergillosis
- Interviews
Mary's interview
How did all start?
With repeated chest infections/chest pain
Do you already have a diagnosis? How long did it take you to get it?
It took about a year before I received a diagnosis
For what medical specialties have you been treated? What has been the most useful specialty for your?
I don't understand this question- I have been treated for ABPA with Prednisolone, the most useful thing for the bronchiectasis as a result of ABPA has been chest physio and a flutter (acapella) device
What has been the most useful thing for you so far?
See above
What have been your biggest difficulties?
The side effects of the prednisolone- bone weakness, muscle weakness, bruising and skin thinning
How has your social and family environment reacted? Have your social or family relationships changed?
Not really
What things have you stopped doing?
Nothing
What do you think about the future?
I hope it is good now I am off the prednisolone but I don't know
So far, which years have been the best years in your life? What have you done during them?
I think the past few years have been the most healthy of my life
What would you like to do if you didn’t have your condition?
Be able to garden and dust etc without having to wear a mask
If you had to describe your life in a sentence, what would it be?
I care for my health, and try to maintain a healthy immune system
Finally, what advice would you give to a person in a similar situation?
The above- but also to listen to the experts, take some responsibility for keeping healthy and have a positive attitude
