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Beckwith-Wiedemann Syndrome
Stories
12 year old daughter w BWS
May 18, 2017
By:
Melissa Perez
Beckwith-Wiedemann Syndrome
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My daughter was born w BWS, born w adrenal tumor, and later developed a thymus tumor, has hypoglycemia, JIA, and HLH/MAS and also crossed hemihypertrophy.
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