There are 121 people in the Bladder Exstrophy map

Bladder Exstrophy treatments

What are the best treatments for Bladder Exstrophy?

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Living with Bladder Exstrophy

How to live with Bladder Exstrophy? Can you be happy living with Bladd...

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History of Bladder Exstrophy

What is the history of Bladder Exstrophy?

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Bladder Exstrophy causes

Which are the causes of Bladder Exstrophy?

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Stories of Bladder Exstrophy

Bladder Exstrophy stories
Hi all, I'm Tijo from India. Born with BE. Undergone 13 surgeries. Now I'm using caths for draining. I regularly wash my bladder. Some issues are there with my left kidney. But I feel better now.
Bladder Exstrophy stories
Jayse was born in September of 2011! He was our first born at a young age! Doctors didn't know what was going on when he was delivered. They had never seen anything like that before. Then we were sent to MUSC and the doctors their knew what to do and...

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Bladder Exstrophy forum


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Statistics of Bladder Exstrophy

6 people with Bladder Exstrophy have taken the SF36 survey. Mean of Bladder Exstrophy is 2219 points (62 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Bladder Exstrophy