Hi all,
I'm Tijo from India. Born with BE. Undergone 13 surgeries. Now I'm using caths for draining. I regularly wash my bladder. Some issues are there with my left kidney. But I feel better now.
Jayse was born in September of 2011! He was our first born at a young age! Doctors didn't know what was going on when he was delivered. They had never seen anything like that before. Then we were sent to MUSC and the doctors their knew what to do and...
9 people with Bladder Exstrophy have taken the SF36 survey. Mean of Bladder Exstrophy is 2324 points (65 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey