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Which advice would you give to someone who has just been diagnosed with Cardiomyopathy?

See some advice from people with experience in Cardiomyopathy to people who have just been diagnosed with Cardiomyopathy

Cardiomyopathy advice
5 answers
Don't search the internet for cardiomyopathy, lots of the information is well out of date and some of it isn't accurate. Take the medication, and listen to your own body

Posted Mar 21, 2017 by Darren 1000
A good cardiologist

Posted Mar 21, 2017 by Michelle 1000
Take things one at a time. Learn about your own limitations.

Posted Mar 22, 2017 by Sian 1050
Listen, breathe, research, think things through. Know most definately, you may not have been through it all, or the worst yet.
Also know, life goes on.

Posted Mar 22, 2017 by Kristine 1000
Taking doctors suggestions seriously and fitting with medical treatment is best thing what people with cardiomyopathy can do

Posted Jul 26, 2020 by fatfat 1100

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Stories of Cardiomyopathy

CARDIOMYOPATHY STORIES
Cardiomyopathy stories
His were the first pair of newborn eyes that I gazed into during those early seconds after his arrival into this world and the first time I knew love like I had never known before. I knew that being a mother would forever be the most important thing ...
Cardiomyopathy stories
My cardiomyopathy story starts in 1969, at the age of 5, when my 20-year-old brother Michael died, having made a short dash from work across a London road to meet our elder brother Paul for lunch.   I say my story starts here, but I have recently ...
Cardiomyopathy stories
My disease is inherited from my Danish father ( because that DNA have ony been found in Denmark ) and one of my daughters has it too
Cardiomyopathy stories
 I was officially diagnosed at the age of 14 in 1987, but I believe I had HCM long before that.  I have a strong family history of people with HCM. Does that I know of are my grandpa who died at 64, which is a miracle.  Two uncles who died in thei...
Cardiomyopathy stories
I was diagnosed with HCM in 2011 after an episode of heart flutter at end of 2010. Elected to have a SICD fitted which occured on May 23rd 2013. Never had a SCA but fitted with device because of risk factors including losing my father to a heart prob...

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Cardiomyopathy forum

CARDIOMYOPATHY FORUM
Cardiomyopathy forum
I'm interested to hear from anyone else my age (51) with Hypertrophic Cardiomyopathy who does some jogging/running. Do you take any special precautions, does the disease affect your running, what have your doctors advised regarding running etc?

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