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How is Castleman disease diagnosed?

See how Castleman disease is diagnosed. Which specialists are essential to meet, what tests are needed and other useful information for the diagnosis of Castleman disease

Castleman disease diagnosis
3 answers
Castleman's is so rare it can be misdiagnosed or left undiagnosed for some time. A Dr Robinson in Bristol United Kingdom diagnoses in 2 weeks.
Consultants in Swansea took 9 months to diagnose me because they firstly ignored my lump and secondly kept refusing to take core biopsy. As soon as they did I was diagnosed but they delayed treatment for 3 months and in that time I started feeling nerve damage

Posted May 20, 2017 by Dave 860
A diagnostic criteria has just been approved for CD which will help immensely with getting a diagnosis. With me it took months of ER visits and negative test results before a lymph node biopsy was performed which determined my diagnosis. Ultimately a lymph node biopsy will need to be performed. Afterwards when diagnosed CD is typically treated by a hematologist/medical oncologist.

Posted Oct 7, 2017 by Victoria 840
Translated from spanish Improve translation
Very difficult to diagnosis, they make a series of different tests, and surgeries in cases of lymph nodes, x-rays etc Is different in each person.

Posted Jun 15, 2017 by Hilda 500

Castleman disease diagnosis

Castleman disease life expectancy

What is the life expectancy of someone with Castleman disease?

3 answers
Celebrities with Castleman disease

Celebrities with Castleman disease

1 answer
Is Castleman disease hereditary?

Is Castleman disease hereditary?

2 answers
Is Castleman disease contagious?

Is Castleman disease contagious?

3 answers
ICD9 and ICD10 codes of Castleman disease

ICD10 code of Castleman disease and ICD9 code

2 answers
Natural treatment of Castleman disease

Is there any natural treatment for Castleman disease?

2 answers
Living with Castleman disease

Living with Castleman disease. How to live with Castleman disease?

3 answers
Castleman disease diet

Castleman disease diet. Is there a diet which improves the quality of life ...

4 answers

World map of Castleman disease

Find people with Castleman disease through the map. Connect with them and share experiences. Join the Castleman disease community.

Stories of Castleman disease

CASTLEMAN DISEASE STORIES
Castleman disease stories
Desde 2012, aparece bolita en el cuello, se hace biopsia PAFF da Sindrome Linfoproliferativo, se pide operar para biopsiar mejor, ahi el 31/10/12 se hace, el resultao Enfermedad de Castleman, y comienza el peregrinar, mas de 10 sesiones de Quimiotera...
Castleman disease stories
I was diagnosed with UCD in 2009 and had a large mesenteric mass removed along with a right hemi colectomy. I have had quite a few complications following, ie incisional hernias, bowel adhesions and bile acid malabsorption . Even though I am told tha...

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Castleman disease forum

CASTLEMAN DISEASE FORUM

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