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How do I know if I have CHARGE Syndrome?

What signs or symptoms may make you suspect you may have CHARGE Syndrome. People who have experience in CHARGE Syndrome offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have CHARGE Syndrome?
2 answers
Typické jsou změny uší, typická ryha na dlaních, srdeční vada, oční nebo sluchové problémy, hypotonie, dýchací problémy kvůli zarostlým nosním dírkam, problémy s ledvinami a genitaliemi
Posted Jul 25, 2017 by Andrea 2000
If I miss an ear
If my ears are very low on my face
If my choanas were closed at birth
If I have a facial palsy
If I have low muscles tonus
Posted Sep 7, 2017 by Pierron-Jordan 1500

Do I have CHARGE Syndrome?

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World map of CHARGE Syndrome

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Stories of CHARGE Syndrome

CHARGE SYNDROME STORIES
CHARGE Syndrome stories
LAYLA TAKES CHARGE
My Sweet Layla Rose, who was born full term, was born with preexisting conditions that were not detected during my pregnancy. At the time of birth, Layla experienced heart failure due to left to right shunting in the setting of a CAVC (complete atrio...
CHARGE Syndrome stories
SIR HENRY
My son, Henry was born 1/31/2013. he has CHARGE Syndrome with Colombola, no cochlea, a little heart defekt, delay in his development, kidney problems (only 1 left), doesn't communicate BUT is the most happy little Henry. We call him Sir because he is...
CHARGE Syndrome stories
PIERO FRANCO EL CHARGE QUE DESAFIÓ AL MUNDO
Nací el 05 de cotubre del 2001, siendo el 06 de octubre de ese mismo año mi primera operación, de atresia del esófago. Al año me operaron de comunicacion inter auricular y estenosis de la valvula pulmonar. Luego a los 3 años me diagnosticaron s...
CHARGE Syndrome stories
NICHOLAS
My son was born in 1998. He has CHARGE - diagnosed within 24 hours and a whole list of additional issues they initially thought was Chromozone 6 Ring Syndrome.. After almost 100 surgical interventions - including 2 HEART, 2 eye, etc.. He is living in...
CHARGE Syndrome stories
MY CHARGER SON, JOSHUA
My son Joshua was born April 28, 2009. He has 8 heart defects, 2 strokes, a clinical CHARGE diagnosis (he doesn't have the coloboma), epilepsy, central apnea, hypopnea, Stage 3 kidney reflux, deaf, malformations in his ears preventing him to use CIs,...

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