Story about Cholesteatoma , Hashimotos Disease.

Cholesteatoma Journey

Apr 18, 2020

By: Susan

Year Condition Began: 1989


32 years ago I was diagnosed with Ctoma during my first pregnancy, discharge smell was rotten but ent would not operate until post birth. 2 operations later, ended up with no taste as he had to sever the nerve responsible for taste as ctoma had encased the nerve and could not be saved. Then 15 years later ctoma again but in the other ear, another 2 operations later for removal and reconstruction, radical mastoidectomy in both ears. 5 years later it returned in right ear, then more surgery, all seemed to settle but years later very deaf. Went back to ent and the prostethis that was originally placed pierced my eardrum due to scar tissue, more surgeries to save hearing was not an option with replacing artificial hearing bones. 15 months ago I had the Baha5 (bone anchored hearing aid) with abutment surgically implanted, sound was amazing and of high quality BUT constant infections at the site and the only option was to remove, just devastated. Then one month ago my ent surgically implanted the Baha5 attract, this is a magnet under the skin and then the outside processor also has magnet and sits on the magnetic internal fixture. Hearing not as good but at least there is not infection. Since the implant surgery i have suffered sever tinnitis and that is causing lack of sleep and constant irritability. I hold an executive job in a private hospital and feel I can't keep up with concentration and fatigue from concentrating so hard to hear in meetings and day to day tasks. Does this ever get any better? Thanks for listening to my rant.

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