3

Can people with Choroideremia work? What kind of work can they perform?

See how people with experience in Choroideremia give their opinion about whether people with Choroideremia can work and what kind of jobs are more appropriated for people with Choroideremia

Choroideremia jobs

Can people with Choroideremia work?


Yes, individuals with Choroideremia can certainly work and lead fulfilling professional lives. Choroideremia is a rare genetic eye disorder that primarily affects males and leads to progressive vision loss. Although the condition can cause significant visual impairment over time, it does not necessarily prevent individuals from pursuing employment or engaging in various types of work.


What kind of work can they perform?


The type of work someone with Choroideremia can perform largely depends on the stage of their condition and the extent of their visual impairment. In the early stages, when visual acuity is relatively preserved, individuals may be able to continue working in their current profession without major modifications. However, as the disease progresses and vision deteriorates, some adjustments or career changes may be necessary.


People with Choroideremia can explore a wide range of careers and find employment in various fields. Here are a few examples of professions that individuals with Choroideremia can consider:



  1. Office-based jobs: Many office-based jobs involve tasks that can be performed using assistive technologies such as screen readers, magnification software, or Braille displays. These jobs may include administrative roles, customer service, data entry, accounting, or project management.

  2. Consulting and advisory roles: Individuals with Choroideremia who have gained expertise in a specific field can pursue careers as consultants or advisors. They can provide valuable insights, guidance, and recommendations to businesses, organizations, or individuals based on their knowledge and experience.

  3. Writing and editing: Careers in writing, editing, or journalism can be suitable for individuals with Choroideremia. With the help of assistive technologies, they can create written content, proofread, edit, or work as content strategists for various media outlets, publishing houses, or online platforms.

  4. Entrepreneurship: Some individuals with Choroideremia choose to start their own businesses or become self-employed. This allows them to have more control over their work environment, schedule, and the ability to adapt their workspace to accommodate their specific needs.

  5. Advocacy and nonprofit work: Many individuals with Choroideremia become passionate advocates for their condition and work in nonprofit organizations or foundations dedicated to supporting research, raising awareness, and providing resources for individuals affected by Choroideremia.


It is important to note that the Americans with Disabilities Act (ADA) in the United States and similar legislation in other countries protect individuals with disabilities, including visual impairments, from discrimination in the workplace. Employers are required to provide reasonable accommodations to enable individuals with Choroideremia to perform their job duties effectively.


In conclusion, individuals with Choroideremia can certainly work and contribute to various professions. While the progression of the condition may require adjustments or career changes over time, there are numerous opportunities available that can accommodate their specific needs and abilities.


Diseasemaps
1 answer

Choroideremia jobs

Choroideremia life expectancy

What is the life expectancy of someone with Choroideremia?

2 answers
Celebrities with Choroideremia

Celebrities with Choroideremia

1 answer
Is Choroideremia hereditary?

Is Choroideremia hereditary?

2 answers
Is Choroideremia contagious?

Is Choroideremia contagious?

2 answers
Natural treatment of Choroideremia

Is there any natural treatment for Choroideremia?

1 answer
ICD9 and ICD10 codes of Choroideremia

ICD10 code of Choroideremia and ICD9 code

2 answers
Living with Choroideremia

Living with Choroideremia. How to live with Choroideremia?

1 answer
Choroideremia diet

Choroideremia diet. Is there a diet which improves the quality of life of p...

1 answer

World map of Choroideremia

Find people with Choroideremia through the map. Connect with them and share experiences. Join the Choroideremia community.

Stories of Choroideremia

CHOROIDEREMIA STORIES
Choroideremia stories
Hello to all affected CHM persons, my name is Michael and I life in Geemany. I m the spokesman of the German CHM community and I work in different European and international organization to make CHM more public and find a therapy for CHM. Last year ...
Choroideremia stories
Two brothers, Tod and Justin Purvis, who suffer from a degenerative eye disease, and are going blind. Circumnavigate the United States, seeing the great sights that make America beautiful. Limited sight, with unlimited Vision.
Choroideremia stories
We found out he had CHM this year.  has some issues at night  otherwise he is doing pretty well.  we have been to PA to see Dr. Aleman and doing a history study there and in Dallas Tx.  my father was diagnosed with RP 40 some years ago...secere n...
Choroideremia stories
Our son was diagnosed when he was 12 years old with CHOROIDEREMIA. He is now 20. Still drives and lives a normal life with it, he is in college and works a full time job. Choroideremia has still affected his eyes greatly mainly night vision. We were ...
Choroideremia stories
I am a 36yo mom of 2 kids. 1 boy 1 girl. I am a carrier of CHM and I have extreme light sensitivity. My family has a very strong inheritance factor for CHM. I have spent my whole life with close family members that are affected with this eye disease....

Tell your story and help others

Tell my story

Choroideremia forum

CHOROIDEREMIA FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map