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Living with Chronic Fatigue Syndrome / M.E.. How to live with Chronic Fatigue Syndrome / M.E.?
Can you be happy living with Chronic Fatigue Syndrome / M.E.? What do you have to do to be happy with Chronic Fatigue Syndrome / M.E.? Living with Chronic Fatigue Syndrome / M.E. can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Chronic Fatigue Syndrome / M.E.
Translated from spanish
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Living with chronic fatigue syndrome / E. M. is not easy. Chronic fatigue syndrome is not a disease of a day or a week. Are months or years living with a constellation of symptoms is very disabling. Exhaustion, malaise, dizziness, aches and pains that make each day hard. All of the days. Anything that being good is simple to make, with pain or exhaustion is hard, that life is more difficult if you suffer chronic fatigue syndrome. You can still be happy. You have to learn to enjoy the small things in life. Don't look at what you can't do that when you have chronic fatigue syndrome, but in all the things that you can keep doing and learn to enjoy them. Choose the path that you would like to go and be happy by wading into it. No matter the destination, matters savoring every moment of the trip. In life we play a few cards that we can not choose, but we can learn how to play with them. With the best hand of poker you can lose the game and with the worst cards you can win. With the worst circumstances you can get to be happy and with the best circumstances you can be unhappy. Don't expect to be best for you to start to enjoy or to be happy. Perhaps in a few months or years when you're worse and you would give anything to be as you are today. So enjoy the day of today by the very evil that you are, enjoy it, grab it and savor every moment that gives you life. That day will be passed and will not return. Only us will be the memories of the best moments lived. Find your passion, the reason you're here. Generally helping other people is one of the most rewarding things of life. Help them overcome difficult times or to make them more bearable the way, as we'd like to help us. To share joys and sorrows with other people also boosts happiness. The good things shared are the double of good. The bad things shared are half bad.
Diseasemaps
Pace, Pace and Pace some more
Posted Dec 20, 2019 by ME International
It isn't easy to live with, but things are improving and there is a lot to be hopeful for. There is still a stigma, even amongst healthcare professionals. I advise finding support online and educating yourself and the people around you as much as possible. It might help to take someone with you when you see a doctor, in case you get tongue-tied.
Remember that some people get better and a cure may be just round the corner. In the interim, it might help to change your expectations and find new ways to enjoy yourself, but stay positive, because there is always hope. Remember there will be good days as well as bad.
Remember that some people get better and a cure may be just round the corner. In the interim, it might help to change your expectations and find new ways to enjoy yourself, but stay positive, because there is always hope. Remember there will be good days as well as bad.
Posted Feb 21, 2017 by Catherine 1002
Learn to relax
Posted May 4, 2017 by Ben 1079
My advice on being happy is to learn to be ok with you our new normal. I can't say that it doesn't frustrate or depress me when I look at my disastrous house mess or not being able to hold a good conversation or do normal activities without planning but the sooner you are able to let go of the expectations of being able to do the same things as before had CFS, easier it will be to find the small blessings of each day.
Posted May 13, 2017 by missylob 1056
You can be happy...but only if you have support around you. It's frustrating and nor easy.
Posted Aug 27, 2017 by Emy 2050
Yes you can be happy. I try to see the positive in everything. Accept this is where you are at but do not let it define who you are. Continue to reach for your goals and make this your back seat driver.
Posted Aug 30, 2017 by Jaime 800
My life has changed radically since having ME. I used to be very fit, in an average week, I'd cycle 60 miles, run 2, swim 1, do weights, cardio and circuit train. I also worked 3 days a week, had 3 children of my own and fostered another 2. I became ill on a cycling holiday and haven't been able to get in my bike since.
It would be easy to give up, to wallow in self pity and depression, but I'm choosing not to. I have had to reevaluate my life and look at how I measure achievement.
I am the emotional rock of my family and friends. I'm who people look to for love and support. I have develop new hobbies and interests and am happy. My life looks very different but is still good.
Think about what you want from life, what you can put in. Grieve for what you've lost, yes, but don't wallow in it. Find a support group. Share how you feel, accept help. Having ME does not diminish you as a person, needing help and support is a gift you can give to the person who helps you. They will feel good about themselves for having helped you; that's a blessing to them.
It would be easy to give up, to wallow in self pity and depression, but I'm choosing not to. I have had to reevaluate my life and look at how I measure achievement.
I am the emotional rock of my family and friends. I'm who people look to for love and support. I have develop new hobbies and interests and am happy. My life looks very different but is still good.
Think about what you want from life, what you can put in. Grieve for what you've lost, yes, but don't wallow in it. Find a support group. Share how you feel, accept help. Having ME does not diminish you as a person, needing help and support is a gift you can give to the person who helps you. They will feel good about themselves for having helped you; that's a blessing to them.
Posted Sep 5, 2017 by Shirley 2050
I had to mourn my old life. I could ok longer do all the things I did before and that was hard. Once I allowed myself to mourn that loss though and accept my limits I began to see all the blessings in life and to enjoy what I do have. I may not be able to jog anymore, but I can sit in a cafe and read a book. I cannot go to the supermarket but I am blessed to live in a county where my shopping can be delivered to my door.
Posted Sep 8, 2017 by Sam 1400
I'm living by keeping constant contact with doctors. Although they have not yet been able to cure me or come close to it I believe constant contact with doctors will keep me alive longer-somehow.
You can be happy with ME. Happiness is a state of mind. If you are experiencing depression, anxiety or other illness you must be treated.
I'm not completely happy with ME- how could I possibly be? I can't go to a carnival or concert. I live in bed. I can walk and drive, but it severely limited me to 20-22 hours of bedrest. I'm going through a divorce and I'm lonely.
I still believe happiness is a state of mind. Study buddhism and Christianity. You may find peace in your religion of choice.
You can be happy with ME. Happiness is a state of mind. If you are experiencing depression, anxiety or other illness you must be treated.
I'm not completely happy with ME- how could I possibly be? I can't go to a carnival or concert. I live in bed. I can walk and drive, but it severely limited me to 20-22 hours of bedrest. I'm going through a divorce and I'm lonely.
I still believe happiness is a state of mind. Study buddhism and Christianity. You may find peace in your religion of choice.
Posted Sep 10, 2017 by Sharon 1500
Rest is the only way
Posted Jan 17, 2018 by Annette 2500
Happy is not what you are with CFS-ME, whoever wrote that. Pace yourself. Keep in balance and in check. Neither excite yourself too much, nor let yourself get too depressed. From my experience both have the same affect. They are not the center where your balance is.
Posted Mar 2, 2018 by Beti 2700
I have to limit activities and rest more often. I had to take early retirement from my demanding job as a middle school teacher. The mental, emotional and physical stress became unbearable.
To be happy, surround yourself with positive people, treat yourself kindly, don’t feel guilty saying “no”, eat well, and sleep as much as you need to sleep.
The most helpful things for me personally is to pray and look for the beauty in life. Look for the little things, flowers blooming, butterflies in flowers, birds at your bird feeder, beautiful clouds.... whatever you find beautiful.
To be happy, surround yourself with positive people, treat yourself kindly, don’t feel guilty saying “no”, eat well, and sleep as much as you need to sleep.
The most helpful things for me personally is to pray and look for the beauty in life. Look for the little things, flowers blooming, butterflies in flowers, birds at your bird feeder, beautiful clouds.... whatever you find beautiful.
Posted Aug 9, 2018 by cathy 2500
Find simple things to enjoy doing from your bed
stay connected to people online as much as you can
meditate [the ME way.. not the normal way.. meaning breathe]
and rest/sleep when you can as you can
toss sleep hygiene manuals and psych meds in the trash
these will further damage you brain
and do what you can as you can, but never push
remember your body is very sick
be kind to yourself
stay connected to people online as much as you can
meditate [the ME way.. not the normal way.. meaning breathe]
and rest/sleep when you can as you can
toss sleep hygiene manuals and psych meds in the trash
these will further damage you brain
and do what you can as you can, but never push
remember your body is very sick
be kind to yourself
Posted Apr 6, 2019 by Fadra 2550
Work on getting a clean environment around you--fragrance-free, chemical free, EMF-free. Take time once a week to reflect upon the good this condition has brought into your life. Count your blessings. Sleep as much as you need to. Use your intuition--do not put anything into your mouth or go into any environment that feels bad for you.
Posted Dec 12, 2019 by Joanna 6200
Pace and learn to say no. Teach your friends and family about this conditon by referring to the ICC. Here is a link to the ICC information.https://www.me-international.org/understanding-criteria.html
Posted Dec 21, 2019 by Pam 3550
Translated from spanish
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To be happy I always say the same thing, regardless of the disease/problem that you had, or that, even if there is none: ENJOY THE SMALL MOMENTS.
Posted Feb 24, 2017 by Anabel Albornoz Molinari 1076
Translated from french
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With the help of my psych, I try to be positive but it is very difficult When your life and those of your loved ones rocking.
Posted Mar 9, 2017 by Edith 1050
Translated from spanish
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Above all hope, and think that they would put something to heal and then think that you have to live with it and not to give up, fight
Posted May 12, 2017 by Marisa 1000
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Accept the disease and not struggle to be a cone we were before
Posted May 25, 2017 by Yolanda Valledor 600
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As already answered there is that work part psychological and affective, and eliminate stress.
Posted Sep 11, 2017 by Eduardo Casasnovas 2950
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I don't know you can be happy when they lost various members of the body. But we must not be pessimistic, to where you can relacionate with others,find out what spiritual and make it something that you want.
Posted Sep 11, 2017 by Haydee de bielik 5120
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Be happy - it is possible if you suffer from MS at an acceptable level, that is to say if you don't belong to the 25% of the bedridden without hope.
I would say better: You can accept the disease, adapt to it with self-help and support groups and material support, to live a day structured and quiet.
Without sobreexigirse, without stress, without people toxic!
With positive thinking!
I would say better: You can accept the disease, adapt to it with self-help and support groups and material support, to live a day structured and quiet.
Without sobreexigirse, without stress, without people toxic!
With positive thinking!
Posted Oct 19, 2017 by Heidrun Kroner 2000
