Lost sleep and broken dreams

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THIS IS MY STORY...

 

HI MY NAME IS DANNY, I AM 25 YEARS OLD. I LIVE IN EARL SHILTON, LEICESTERSHIRE. 

AS MANY OTHERS I WAS UNDIAGNOSED FOR MANY YEARS BEFORE MY DIAGNOSIS. IN 2012 AFTER MOVING TO A NEW DOCTORS SURGERY AFTER MOVING HOUSE I WAS DIAGNOSED WITH CLUSTER HEADACHES. 

SOUNDS GREAT TO HAVE A DIAGNOSIS HOWEVER WHAT WOULD LIE AHEAD FOR ME?

THE DOCTORS PUT ME ON VERAPAMIL AND SUMATRIPTAN NASAL SPRAY. THIS DID NOT WORK VERY WELL.

IT WAS THEN DECIDED THAT THEY WOULD KEEP ME ON VERAPAMIL AND GIVE ME THE SUMATRIPTAN INJECTION. THIS COMBINATION FOR NEARLY A YEAR AND A HALF.

THAT SAID THE CLUSTER HEADACHES GOT MORE FREQUENT AND NO REMISSION. I DID A BIT OF RESEARCH AND FOUND OUCH UK. THE ORGANISATION EXPLAINED WHAT NEEDED TO HAPPEN AND WHAT TO DO.

I WAS ADMITTED INTO HOSPITAL DURING A REALLY BAD ATTACK. I SEEN A NEUROLOGIST THERE AND WAS ASSESSED. THEY GAVE ME A SHORT COURSE OF STEROIDS AND THAT SEEMED TO HELP UNTIL I CAME OFF THE STEROIDS.

IT WAS THEN I WENT BACK TO THE DOCTORS AND INSISTED MORE WAS DONE. I WAS THEN PRESCRIBED HOME OXYGEN THERAPY. THIS IS HELPED DURING ATTACKS MORE VERAPAMIL HAS BEEN INCREASED TO THE MAXIMUM AND I'M NOW WAITING TO GO BACK TO THE NEUROLOGIST.