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Living with Cluster Headaches. How to live with Cluster Headaches?

Can you be happy living with Cluster Headaches? What do you have to do to be happy with Cluster Headaches? Living with Cluster Headaches can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Cluster Headaches

Living with Cluster Headaches
19 answers
Build a good support group around you. I can't stress how important this is. Without mine I probably would not be here writing this right now. Second find a treatment that works for you that helps lesson the time of the attacks.

Posted Feb 21, 2017 by Lucas 1152
accept and search adequate help by a neurologist

Posted Mar 3, 2017 by Yoda 4292
Living with cluster headaches is like riding a roller coaster - you just have to ride it as there is no getting off.
Lifestyle requires adaption to ensure that whatever you decide to do you have yourself covered to compensate with possible onslaught of an attack. Don't leave home without your "safety net" medications, don't go anywhere where noise levels may be triggers and don't go anywhere that you can't remove yourself from should an attack come on. This also includes over exercising.
What do you have to do to be happy with cluster headaches?
Who wrote this question? Obviously someone with little knowledge of cluster headaches. Happiness is not a consideration with cluster headaches - it is misery most of the trip. Do more research!!

Posted Mar 4, 2017 by Donna 1005
Once I was finally diagnosed with cluster it was a big relief. Was sick of being treated like a junkie, craving pain mess. Once who have proper treatment in place I believe who you be happy and have a decent quality of life.

Posted Apr 27, 2017 by Matthew Bcfc 1000
Accept it. There is not much happiness with this disease. Make the most of the pain free days.

Posted May 21, 2017 by Pepe922 2000
No. Never happy with cluster headaches.

Posted Jun 3, 2017 by Maria 2001
No you can not be happy while suffering with a CH at the time

Posted Jun 4, 2017 by Tim 2150
You can't be happy being chronic I never get a break

Posted Jun 11, 2017 by Jeff D 2000
Being happy under any circumstance is up to the individual. I will admit that this has changed my life in just 5 weeks of 2 to 3 a day, 3 hour torture sessions. I do not take for granted the moments I am without pain. I have developed a sense of urgency I never had before. Just make the most of your good days!

Posted Sep 23, 2017 by stan 1000
You can be happy only if you decide to keep on living and to share your pain with a partner or the Cluster Headache Support Group or a friend. In isolation depression can easily set in. It is important to wake up everyday and to decide that the day is going to be a good one, that cluster headaches will not take over your life and happiness.

Posted Oct 26, 2017 by Lee-Alison 2000
Nightmare :\

There is no advice .. Everyone and how he lives with it

Posted Feb 1, 2018 by Danny 3050
I is possible with my families support.

Posted Oct 20, 2018 by Michael Trapp 1600
keep smiling. adapt to clockwork

Posted Nov 7, 2018 by Oliver 3000
Stay with us and hang in there there is hope for new treathment. You can be happy during the time you don t suffer from the attacks if you have the episodic version . and for the people with chronic cluster headache please keep faith and hope they are busy as ever with experienting new treatments!

Posted Nov 7, 2018 by MC 2500
Try not to depress. It will be pass. Stay strong

Posted May 16, 2019 by vasilis 2500
Educate yourself as much as you can. The more you learn about your condition and how it affects you and your life, the less ashamed you'll feel about it. Your biggest fear should be not knowing how to live with it!

Posted May 20, 2019 by Kendra 4550
Keep hydrated and don't overexert yourself. Be aware of and avoid triggers. Always have an abortive medication or high-flow Oxygen available.

Posted Aug 22, 2019 by Judy 1600
Cluster episodes arise without much warning, and require immediate and total attention.
I have had them while driving with my young children in the car. Pulling over and having children watch their daddy cry is not a pleasant experience. Clusters often settle in to predictable schedules during their episodes. Learn to recognize early symptoms and occurrence intervals, and try to place yourself in a safe atmosphere during the episode.

Posted Apr 13, 2020 by Larry 5050
Translated from spanish Improve translation
We may not stop to beat, there are days that you can't even get up, it is a pain that is there always in my case never goes to the pain jan the eye but not left me a normal life, but I won't lie in bed depressed .

Posted May 9, 2017 by Nélida 1001

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World map of Cluster Headaches

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Stories of Cluster Headaches

CLUSTER HEADACHES STORIES
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My story can be read at http://www.lifewithclusterheadaches.com or http://www.levenmetclusterhoofdpijn.be Thanks for visiting!
Cluster Headaches stories
Cluster headache patients' information (German) http://www.ck-wissen.de/ckwiki pf wishes! Friedrich
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first I thought I had really bad tooth ache, this sounds silly,but I had never experienced tooth ache and everyone who I spoke to said tooth ache is the worst pain in the world. Well 3 different dentists and 3 teeth extracted at my request ( I actua...
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Chronic Cluster headaches  suffered 12 years   

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There are registered many possible treatments for the Cluster Headaches, I ve listed some of them but I wold like to ask you to explain  a little bit which of the has gone better... Oxygen Treatment Dihydroergotamine Calcium channel blockers&...

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