I am the founder of AMERICAS COLLOID CYST SURVIVORS FACE BOOK GROUP with 150 members and over eight years experience recovering from haveing my 1 x 1 Cm cyst removed.
after my surgery, my Genny who has been my guide through this explained to me over and over what happen isn't an excuse not to try rather more reasons to try harder.
Accs is currently doing a grass root mapping project that will show where you where born (because the Condition is a Birth Dedect), the Hospital that discoverd your Colloid Cyst and the Hospital where you had your surgry to join in on the survey all you have do is http://goo.gl/forms/NhA884q8Z2kIVtMw1,