Jen's interview
Error
How did all start?
Fusion surgery in my foot.
Do you already have a diagnosis? How long did it take you to get it?
It took about 9 months to get a diagnosis.
For what medical specialties have you been treated? What has been the most useful specialty for your?
I’ve done nerve blocks, physical therapy for desensitization of my skin, Nerve medications, pain medications.
What has been the most useful thing for you so far?
A combo of the nerve meds and physical therapy.
What have been your biggest difficulties?
Getting approved for disability. I’m unable to work so not being able to financially provide for my family has been the hardest part
How has your social and family environment reacted? Have your social or family relationships changed?
socially my life is very different. My family has suffered because of financial issues
What things have you stopped doing?
Hiking, running, working out, dancing, living an active outdoor life.
What do you think about the future?
I’m hopeful that it will get better
So far, which years have been the best years in your life? What have you done during them?
The best years of my life were before I got CRPS.
What would you like to do if you didn’t have your condition?
Everything I used to. Working out, dance, being able to be an active mom with my kids.
If you had to describe your life in a sentence, what would it be?
I feel my life right now is stagnant.
Finally, what advice would you give to a person in a similar situation?
Don’t give up finding a doctor that will listen to your concerns, find what works for you to help relieve your pain. Trust your gut when it comes to not being pressured into meds or therapeutic treatments you don’t want.
