Story about CRPS Complex Regional Pain Syndrome , Chronic Kidney Disease, CRPS Complex Regional Pain Syndrome, Pulmonary Hypertension.

Causalgia

Sep 24, 2023

By: Rick

Year Condition Began: 2012


Become familiar with the website Practical Pain Management. IN particular, Dr Forrest Tennant. I've been on opioids for 14 years for CRPS Type 2.
I have just been cut off from my pain medications by my pharmacy of many years for treatment inconsistent with chronic pain. CRPS is not chronic pain, it is Intractable Pain of a particulary intense nature. It does indeed precipitate changes in body organs, and the heart, and causes myocardial infacrctions. And a slow, miserable death.
Anyway, I have been husbanding the pain meds I have left.
20mg of methadone every 8 hours since 2017. With no dose increase. This has been the most effective daily medication I have taken that helps diminish the pain. But does not remove it.
10mg to 20mg of Oxycodone each day for (BTP) Break Through Pain. The most effective BTP medication I've taken, better even than 15mg of morphine.
My doctor found a pharmacy that sells Levorphanol. A medicine with properties similar to methadone, which is a long acting med with a long half life. It rarely stops working
at the 8 hour mark as inferior pain meds do. because it lasts a long time.
WHen my pain meds were cut off, I figured I had a month of life left. Which is how much methadone I had left. My wife and I talked about this at length. when I couldn't take anymore
I would go to my bedroom. We have to sleep seperately because of my insomnia, tossing, getting up requently during the night, I would go to my bedroom and take what I needed to
end my life. My family understands. Today I had a 4 Hour Pain Level 10 Pain Attack, that nothing worked to alleviate it.
Anyway, for my ast night I figure Twenty 10mg methadone tablets, along with Klonopin tablets, and hypertension medications which would also serve to slow my heart, should about do it..
It is not the most certain way to die, there are too many things to go wrong. The most certain way is to jump from a building. As long as it is high enough to do the job. 6 Stories or more.
Most hotel windows aren't able to be opened. But parking garages can be quite tall and they have big, wide open windows with no glass. And usually a wide open top floor for parking that gives easy access to the parapet.
I refuse to die from pain. Jumping is quick, and close to 100% effective..
For those of you who profess that a good attitude will keep a CRPS person going, you are naive and don't know what you're talking about. Keep those silly opinions to yourself please. They do nobody any good, except to irritate those of us who survive with this disease and the pharmacists who fear losing their licenses because of the frequent visits by the dea.
I most would like to self immolate myself on the front steps of the dea headquarters, but too many people have access to fire extinguishers, and I don't want to be extinguished and remain alive with incredible burns. But the DEA deserves that kind of publicity. But they won't get it from me. I need a more certain way to check out.
Anyway, I hope you who suffer from extreme naievity and know nothing of what you say are somewhat shocked into silence by this posting. You deserve it.
For my fellow sufferers, and for those who truly want to learn, become famliar with the website Practical Pain Management. There you can find real, informed answers about intractable pain. Especially if you are with the DEA or Law Enforcement. Familiarize yourselve with the ramifications of exterme pain. You should establish a program that includes a database of certified intractable pain patients who won't be screwed with. It would cut down on our suicides. And you are the responsible people for scaring doctors and pharmacists.
God Bless.to my fellow sufferers.

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