My trigger is physical exertion and high blood pressure/heart rate. So I had to give up running which I’ve been a competitive runner my whole life.
Have a good support person
Marijuana
Having a written plan (by the consultant) to take with me when I’m going to A&E saves time and explanations about CVS
Knowing that others are out there dealing with a similar hand of cards helps.
Cold Laser Therapy
Mitochondrial supplement cocktail
TONS OF DOUBLE MINT GUM
I drink spring water mixed with Gatorade to have something to throw up.
My fiancé
A long soft back rub will put me to sleep. When you're sleeping you dont feel pain or nausea.
Watching what eat I’ve managed my symptoms enough to be bout free for two years
RSO oil is the only thing that stops an episode for me.
Propanolol
Took 12+ years for a diagnosis
Cbd oil
Amiltriptoline did help for a while
Sipping cold beverages like ice water or Gatorade.
Aware of early indications of onset
My symptoms usually last 4-7 mths. And come back about same.
Hot baths and sleep
Support from friends and family is very important
Facebook support groups