Story about Dandy-Walker Syndrome .

Sebastian

Aug 14, 2017


My son Sebastian was born in December 1994, in late summer 1995 he started having seizures. After a few EEG's and a brain mri they said he has Dandy Walker Malformation. He was a bit behind meeting his milestones and the doctors had told me not to worry. After we discovered the issues I got him enrolled in early intervention, it took years of PT, OT, SPEECH & vision therapies - he also has CVI for him to walk and feed himself. He'll always have delays and he'll never talk but he's my sunshine everyday- through all the struggles of life. I'll never trade him for anything. 

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