World map of Dysautonomia / POTS


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Dysautonomia / POTS stories


MI VIDA CON DISAUTONOMIA UNA LUCHA CONSTANTE.


Hola soy Aurora tengo 39 años, algunos conocen mis artículos pero nunca he escrito mi vida. Pues a los 17 años me diagnosticaron epilepsia, mi vida cambio, tuve que dejar la escuela por un año mientras encontraban el mejor...

Views: 3279 Aug 8, 2016, 11:55 PM by Aurora Saez

FALLING OFF MY TOES


While I still worked as a ballet dancer and later a ballet teacher (stopped performing at age 35) my dysautonomia symptoms were easily managed, but durubf times when I did not dance they were much more pronounced.  At 32 I had a heart attack due...

Views: 897 Feb 16, 2016, 3:50 AM by Aletta

NORBERT'S STORY - PRIMARY AUTONOMIC FAILURE


I've had Hypotension attacks since age 11.  I am now 69 and was just diagnosed for Primary Autonomic Failure.  I know that my diagnosis is really a term that includes Parkinsons (PD), Multiple Systems Atrophy (MSA), and Pure Autonomic Failu...

Views: 681 Feb 16, 2016, 10:15 PM by Norbert

KYLENE'S STORY


I was diagnosed with IST in 2012, was taking calcium blockers to try to control it and I just had to keep increasing them as they kept turning up inaffective. January 2015 I got very sick after taking a vacation. Recovered from that (virus) but never...

Views: 661 Jan 3, 2016, 11:51 AM by Kylene

POTS


It's a year this October that i've been ill. Was diagnosed just this past May. Struggling with doctors and medications. Hoping to get better.

Views: 532 Oct 20, 2016, 4:52 PM by GG

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Dysautonomia / POTS forum


GARDASIL


How many of you have received the Gardasil Vaccine (HPV Vaccine) that now have Dysautonomia? 

Views: 646 Jan 3, 2016, 1:29 PM by CeCe Hillman

SYNTHROID OR PITOCIN


Anyone gets POTS after talking synthrpid or being induced with pitocin?

Views: 505 Oct 20, 2016, 3:50 PM by Da

RENAL DAMAGE?


I have renal damage. Hypotension may have caused it. Anyone else?

Views: 384 Jul 21, 2016, 11:38 AM by Angie Giles

DISAUTONOMÍA CHILE


  Hola! Somos Disautonomía Chile La misión de Disautonomía Chile es contribuir a la sociedad mejorando la calidad de vida de las personas diagnosticadas, en busca de diagnóstico, cuidadores y familias de personas con Trastornos del Si...

Views: 134 Jul 29, 2021, 10:40 PM by disautonomia Chile

SOMOS DISAUTONOMÍA CHILE


  Hola! Somos Disautonomía Chile La misión de Disautonomía Chile es contribuir a la sociedad mejorando la calidad de vida de las personas diagnosticadas, en busca de diagnóstico, cuidadores y familias de personas con Trastornos del Si...

Views: 92 Jul 29, 2021, 10:42 PM by disautonomia Chile

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