I had a book I wrote about dealing with chronic illness published.
Botox injections every 3 months
Diagnosis
ejercicio
Keep moving
MUITA FÉ EM DEUS
rest
After three years from the first symptoms I found friends to share most with Dystonic and not feel alone and without a diagnosis
Botox every 3 months
Chiropractic care
Sleep/rest
I have decided to not let this distonia control me.
Dr.Brown and Stack
Full support of my husband and family!
Botox
Clonazepam worked great!!
botulinum toxine ...from 4 to4 month
Diagnosis - 2 years of totally, thinking I was going mad
My friend's and family's support and understanding.
Accepting my new life with SCA2 and GD
Ivig 2x's a week for 6 hours and rituximab
Neck Massage
Focal Dystonia appeared in my index finger of the right hand when I was 19 years old and never before had I suffered from this dissease.
Try to relax
Learning more about Blepharospasm
Have 4 thoracic vertebrae fused.
Giving blood at work that triggered it all
PK protocol iv infusions developed by Dr Patricia Kane
DBS in Oct 2017
Doing SMR
Botox injections
Music just singing along with family and friends
Having the baclofin pump put in was a life saver to help manage my spasms
A supportive family!
Baclofen Pain Pump since 2009
I have a lot of mescal movement
Холодный вентилятор
Tomar suplementos omega 3
Consistent meds (dopa responsive) Carpadopa Levidopa
Mi tía que ha estado en este proceso
Support of my sibling
Research I have done to understand my conditions
eliminating chemicals and additives
Getting a diagnosis
Accepting that I have limits and not being ashamed to admit to others about them
Getting a diagnosis
Hydration
Not thinking about negative people or negative things