Not wallowing too often, having positive attitude really does help
endless support from my boyfriend, family and friends
A força que tenho, não desisto nunca, mesmo com muitas dores. Deus está dentro de nós! nada é maior do que Ele! Estar sempre feliz, mesmo com dores e dificuldades de locomoção.
Setting up and running the EDS Lincolnshire support group to enable us to share our experiences and knowledge
Being gluten free
Setting up a local support group - https://www.facebook.com/groups/eds.shropshire/ & other Facebook groups
Hot showers in the mornings
Talking with a friend who also has EDS makes it less lonely.
Avoiding allergens
Gluten free and low fodmap diet. Focus on real food no preservatives
My Lovely friends
Learning to say "no" and accepting my limitations
Family support
Clean eating - no white carbs
emotional support
Family - Support from my family to help me when times are tough
medication
diet, keeping my mind busy coloring having support group meetings in person
occupational therapy to learn to control my body better to help prevent dislocations/subluxations
Finding ways to do things that are unique to me.
Getting the right medication for me witch is pain medication, muscle reactants, sleeping pills when needed and meds for depression.
Eliminating wheat and sugar
My mum and my dog, always make me smile no matter how bad things are
Doing my hobbies, helps distract me and helps me feel in control of something.
Drawing, sewing, etc. Basically any hobby to keep my mind off the pain!
Don't want my son to suffer without treatment for as long as I have
Reading up about the issues so that I know most symptoms are related and normal for someone with this problem
Shelter (home)
being careful about always having some food on me
trying to keep my business going
Absolute determination to never give in and reach all of my goals no matter what...graduating as an RN in May 2016...also dancing for physical therapy...and of course my furbabies
Cutting out gluten and dairy
Humanism
Gentle walking program and elimination diet seems to have decreased my inflammation levels, not as sensitive to previous food and exercise triggers.
Humor
my family who listens to me when no one wants to listen to me
God
Pace myself through the day and take breaks when I need them. Use the riding cart if needed at the store.
Being grateful - taking time to notice the good that happens every day keeps me from dwelling on how badly I feel.
Friends who support me
Quiting my high stress job, simplifying my life, letting go of the less than necessary
Exercise avoids tightness in joints, muscles
Compression Socks (properly fitted)
The gym. i can't powerlift like i used to, but even small weights are enough to build muscle and overcompensate for my lax joints.
Finding a dr that listens & knows about EDS
Finding a dr that listens & knows about EDS
Changed the way I eat, sleep and function along with using THRIVE to feel better.
peer info -support
cranioplasty
looking to meet more local people with Celiac disease