Help us to help more people
  2. Ehlers Danlos
  3. Advice
Diet, medication and appropriate exercise are vital
by Terri
Talking to my mom when I feel down about being sick.
by Meagan
Friends & family
by Jenny
Online support groups have been a life saver.
by Sarah
a walking stick helps me get through my day!
by Kirsty
A coccyx support cushion, I can now sit up with minimal pain - haven't been able to do that for 3 years prior to that
by Lorelai
Cocodamol for pain-lifesaver!
by Hannah
Being a member of support groups
by Emma
Trying to look nice everyday and not staying in clothes I slept in.
by Lori
Seeing a Holistic Massage therapist as pain medications don't work.
by Louise
Demerol is the only pain medication I am not allergic to, and it does not seem to affect my digestive system negatively. Whether I am taking Demerol, or not taking it, my digestive pace remains the same. Demerol used to be used for Duodenum spasms.
by Tanya
My husband- a man who works in healthcare going to appointments telling them it is not anxiety. They didn't believe me.
by Michelle
my TENS unit
by Gabrielle
Gabapentin. Keeps bp and HR from bouncing so fast and to such extremes,
by Ginny Ickle
Family/boyfriend support
by Diana
Gaining knowledge to help myself
by Max
Family & Friends
by Jesse
Learning as much as possible about EDS, listing to my body, not overdoing it or pushing it has cut down on injuries due to faulty connective tissue.
by Jane
Fusion of the toes on both my feet. So I can fit them into shoes again!
by Darla Sanders
Being able to help out friends when they need advice makes me feel useful again.
by Susan Eskdale
Support from my husband
by Ehlers Danlos Syndrome
to be active
by Kari
Finding good Doctors is so important.
by Tamira Bridge
Pacing yourself. Listen to your body when you're tired then rest.
by Sam
Reiki and acupuncture
by Jan Groh
Eating nutrition rich foods helps everything.
by Angela
Smart Crutches are amazing
by Mary L.
Meds and heating pad.Nj for nutrition.
by Theresa/Brooke
Attend doctor appointments
by Chris
Needed Surgeries
by Alicia
Sublingual zofran
by Jessie Marie
research condition and come to terms with it
by Carole
Le soir penser à 3choses qui se sont bien passées dans notre journee
by Cindy
Massages from my husband
by Sarah
Ibuprofen & bracing
by Tamara
walking regularly
by sarah glynn
Stay connected with others consistantly beyond the pain and discomfort.
by Sandy
I eat healthy and drink lots of water
by Christie
Cannabis, the main reason I'm still alive.
by Sylvia
Going for a short walk each day and local disabilities pilates, having things to focus on even if they hurt
by Jessica
Allowing myself to rest
by Emma
Surgery
by Ellen
Use of a wheelchair/powerchair to maintain some independence
by Nancy
To accept there are things I cannot do and I have to live with it
by Alicia Flors
People who understand
by Hazel
Getting seen when I have colds/chest/coughs
by Stefani
Finally allowing myself to open up and let people in
by Carly
Altering my medications and adding supplements
by byoung353p
hot bubble baths
by Tanya
my eds was a lot worse when I was 19 stone. now 10.5 stone.... always in pain but can breathe without a nebuliser/inhalers
by Cheryl