Help us to help more people
  2. Ehlers Danlos
  3. Advice
a good doctor
by Rachy
A supportive husband
by Alexis Hanson
Insoles to help with supporting my ankles
by Vicki
Going a camp in the states for NF
by Nicole
A supportive doctor and family
by Emily
Not limiting myself
by bitteralaska
Caring, knowledgeable practioners providing correct diagnosis, treatment and follow-up.
by Deborah
Keeping a positive frame of mind has made a huge difference
by Christina
My husband and children who help me get from day to day.
by Shannon
My mom, who gives up a lot of time for me to feel better
by Caroline
sunshine, positivity and never giving up
by bobbi
Accepting my conditions and adapting my life to them instead of fighting them
by Helen
Eating a healthy diet and taking LOTS of vitamin C
by Briana
MD and others who know and understand this disorder
by LeighAnn
Having a supportive husband has been invaluable. My children are very supportive, also.
by CynthiaS
Discovering corn allergy and eliminating it from my diet
by hedsbk
taking my time with things
by Crystal
polysaccharides
by titchyditchy
Pain management
by Barbara
Re structuring my hours at work Was too fatiquing the long hours I had
by Rckygrllaura
Therapy
by Heather
Having help to manage the home
by Victoria
Stay as active as possible
by Judy
The sun on my face
by Lynn
Physical Therapy
by Jeff
LDN
by ck1
When I am not working
by Donna
Take it a day at a time!
by Caz
My trusty, comfy knee brace.
by Angela
Enjoy life, don't let EDS control you, you control EDS!!, again everyone is different and have more pain than others. Talk about EDS and spread awareness.
by Shane
Nail polish
by Tianne
Undiagnosed EDS
by Joanne
Smiling
by Juliet
Yoga strengthening and physical therapy
by KB
Combination of meds. Cocodamol / Lyrica / Diazepam / SSRI and Morphine for really bad days.
by Shelly
My, almost 10 year old, daughter, hubby, and our dog (Brody) are my reasons to keep fighting.
by Kacy
Exercise
by Ellswim
Joint braces
by Frankie
LOTS of therapy
by Elizbuch
Staying active.
by Patty
medcine
by Brenda
medcine
by Brenda
Aquatic physical therapy and herb.
by Yvonne
Being able to step back and rest is a life saver
by CenBrennah
Physical and occupational therapy
by stairphobe
A comprehensive team of specialists working together despite being at different hospitals.
by Rubiegem8280
Having a sister who always listens and just empathizes
by Melanie Barnett
knowing my blood panel and fixing the vitamins accordingly has helped immensely.
by Josette
Building relationships with people who are supportive
by Breanna
My Meds, 38 a day. but I would not be where I am today without them and my Wheelchair and Crutches!
by Lette Moloney