well I knew I was different,I was helping run a pain group , helping myself and others , when I first heard about eds , it was Cinderella shoe , asked GP , instead of telling my to stay away from Google he sent me for X-rays and blood tests , then tell me I have an appointment with a geneticist. I'm 46 , at least my daughters won't have the same experience with been wrongly diagnosed, it's been pretty full on learning curb