I am the Executive Director of the Robinow Syndrome Foundation. In 1995 my first child was born and diagnosed. In 2000, it was confirmed he has the Recessive form of Robinow Syndrome. I met several other families in the USA during a Robinow Syndrome ...
Not enough time in the world to explain my life to this point. Alot of everything. Not much I haven't experienced in terms of emotion and external conflict. I have 3 brothers and one sister, a non-existant mother, and a non-biological, but been there...
0 people with Robinow syndrome have taken the SF36 survey. Mean of Robinow syndrome is 0 points (0 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
