At my worst time around 1985/1995 I was one of Netherlands five most extreme cases of the disease. It took 8 operations to stop it and 5 for damage control.
It didn't even stop after my total hysterectomy it just kept coming back.
But finally it did stop and now I am living with a lot of problems due to the disease.
Keep informing your surroundings because after all these years people still don't know nothing about this disease. That's why the don't understand.
Keep demanding a good treatment with a physician who knows his stuff about Endometrioses.