My Story

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Hi,
My name is Carys. I am now 36, I was diagnosed with Trophamoplastic Disease 2 years ago after having a Complete Molar Pregnancy, my pregnancy was terminate by DNC at 11w 5d, due to having an emergency scan, I had 2 beautiful children prior to the molar pregnancy and knew something was quite right, I was having terrible pain in my pelvis and felt really poorly, I had really bad sickness and felt extremely exhausted to the point I didn't want to move, I was losing weight but my belly was really swollen and I felt further gone than I was.  I felt constant pressure in my womb like my womb was to small for the baby, I had numerous trips to the GP where I was treated for kidney infections, but thankfully it was detected. It was the most freighting time of my life, I had never heard of the disease and wasn't sure what the future would hold, I was not told much at the hospital after removal just the fact I would have to wait for the biopsy results which took what seemed forever to come back, it took just over 6 weeks for the confirmation to come in the post.  Terrified was the word when I received confirmation always in my mind I'm I going to die, GPs and hospital were not very supportive as they didn't really know what was going to happen, I was reffered to Charing Cross hospital in London which sent me fort nightly sample boxes where I would have my GP nurse to take bloods and I'd take urine samples and send back and ring for the results 3-5 days after, I would get my results and then advised on my next test. The staff at Charing Cross were fab always at the end of the phone to help and answer any questions, i continued doing the tests for 6 long months and thankfully my levels dropped nicely, I have never felt so releaved in all my life, the journey was one of the most emotional times of my life I must say I cried constantly for a year, as I am sure you will be feeling the same right now, not only are you grieving a loss of what you thought was a beautiful baby, you also feel confusion, you have times you feel dirty like you were carrying an alien it's the strangest emotions ever and the thought that is could spread and my turn into a malignancy and having to have further treatment is terrifying. Still to this day my heart aches and the thought and I am terrified to have another child I am bless I have 2 beautiful caring girls. Since I have continued to have gynae problems and found I have Endometrosis.  I still feel quite emotional over it but thank the Lord each day that I am still here to tell the tail and help other ladies along the frightening journey, i had so much help and support from Molar pregnancy page on Facebook and met lovely friends on there, in my time of need when family and friends didn't understand, there was always someone there to talk to and express fears to and who really did understand. I would recommend to anyone if you have been diagnosed to join the endometrosis website aswell as the Facebook page. If you have any questions or feeling you need to talk just inbox me on my page. Big hugs to all diagnosed