There are 147 people in the Fabry disease map

Fabry disease life expectancy

What is the life expectancy of someone with Fabry disease?

Is Fabry disease contagious?

Is Fabry disease contagious?

ICD9 and ICD10 codes of Fabry disease

ICD10 code of Fabry disease and ICD9 code

1 answer
Is Fabry disease hereditary?

Is Fabry disease hereditary?


Stories of Fabry disease

STORY
Fabry disease stories
1980's- gastro issues/ burning hands and feet. Told females weren't affected so couldnt be Fabry's. Dad diagnosed in 1960's so I was tested at birth and always knew "carrier!" Dad had kidney/ strokes. Sister, 2 nephew and 1 niece with Fabrys.  ...
Fabry disease stories
Was not diagnosed till my 3rd stroke at age 34. Now 38 years old total of 6 strokes. The last stroke was February 2, 2016. Was on the right side where the others have been on the left. I actually feel better than prior. My eye site is better as well ...
Fabry disease stories
I was diagnosed in 2014 and started ERT in April 2015 for fabry.  It has signicantly affected my heart, which is enlarging.  Hopefully treatments will arrest this and maybe even improve it.  I am living a good life and am very grateful...
Fabry disease stories
I am the only person in my family to have Fabrys. I was diagnosed by my optician. It's ice to have a name to this disease as I have lived with it since I was 5 years of age. I have a mutant gene, so Fabrys starts with me and ends with me. I'm under t...
Fabry disease stories
Born and raised in Tokyo. I also have an American cidesin ship because my mother is American. I am a university student now. I get my treatment once in 2 weeks. Don't have much difficulty in Daly life but I can't exersis alot do to my Simpsons of h...

Tell your story and help others

Tell my story

View more

Fabry disease forum

QUESTION

Ask a question and get answers from other users.

Ask a question

View more

Statistics of Fabry disease

1 people with Fabry disease have taken the SF36 survey. Mean of Fabry disease is 1300 points (36 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

View more

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map

Share

Fabry disease