Help us to help more people
  2. Fabry disease
  3. Advice
Infusion,pain medison
by Noah
infusions
by Judith
infusions
by Judith
I first had symptoms at the age of 5 but symptoms were dismissed as a high temperature. I have lived with the burning in my fingers and toes for years so it's nice to get a name for the symptoms.
by Rachel
Accepting if I do certain things I will suffer later- so moderate and reduce, rest lots!
by Debs
100 mg Gabapentin helps me to sleep at night.
by Linda
The biggest thing is ERT.
by Barbara
My boys
by Angie
4 years ERT
by Troy
Sport (Cheerleading)
by Katrine
Enzyme Replacement Theapy
by Terri
Enzyme Replacement Theapy
by Terri
fabryzyme treatments
by Carol Smith
Infusion
by Sarah
have faith in the God he does work miracles if we believe in him . lean on him to keep us strong .
by Nancy
ERT
by Linda
Learning to rest
by Rebekah
Good information
by Dawn
God
by Felix
enzyme replacement
by Phil
Get your Enzyme Replacement Therapy, every two weeks on time.
by Janell
Wear you cooling vest.
by Kayne
Meide enzymzerstörende Einflüsse.
by SHG
Friends
by Noah
theres worst things out there
by Judith
theres worst things out there
by Judith
I'm the only one in my family to have Fabrys.
by Rachel
Warm or cold application to pain areas. Unpredictable what works when.
by Debs
Support groups; being able to share helps because we know we are not alone.
by Linda
Being able to talk openly with my doctor
by Barbara
ERT
by Angie
Diet
by Troy
Friends and family there helps me
by Katrine
positive people
by Carol Smith
when my daughter told me we were in this fight together and so many others with this diease were as well
by Nancy
Microwave slippers to keep my feet warm
by Rebekah
A supportive husband
by Dawn
God
by Felix
pain medication
by Phil
Always go to all of your specialist appointments.
by Janell
Tell your mom when you are hot, cold or in pain.
by Kayne
Essen enzymreicher Nahrung, bei bestehender Metallintoxikation kombinieren mit Bindemitteln
by SHG
Reasnable price of treatment thanks to the government
by Noah
help once diagnosed
by Judith
help once diagnosed
by Judith
The support of my family helps me through my bad days.
by Rachel
Tens machine - I move it around my body to Change pain messages to brain.
by Debs
ERT
by Linda
Knowing I am not alone in this struggle
by Barbara
Having people to talk to that understand
by Angie