Infusion,pain medison
I first had symptoms at the age of 5 but symptoms were dismissed as a high temperature. I have lived with the burning in my fingers and toes for years so it's nice to get a name for the symptoms.
Accepting if I do certain things I will suffer later- so moderate and reduce, rest lots!
100 mg Gabapentin helps me to sleep at night.
The biggest thing is ERT.
My boys
4 years ERT
Sport (Cheerleading)
Enzyme Replacement Theapy
Enzyme Replacement Theapy
fabryzyme treatments
have faith in the God he does work miracles if we believe in him . lean on him to keep us strong .
Learning to rest
Good information
enzyme replacement
Get your Enzyme Replacement Therapy, every two weeks on time.
Wear you cooling vest.
Meide enzymzerstörende Einflüsse.
theres worst things out there
theres worst things out there
I'm the only one in my family to have Fabrys.
Warm or cold application to pain areas. Unpredictable what works when.
Support groups; being able to share helps because we know we are not alone.
Being able to talk openly with my doctor
Friends and family there helps me
positive people
when my daughter told me we were in this fight together and so many others with this diease were as well
Microwave slippers to keep my feet warm
A supportive husband
pain medication
Always go to all of your specialist appointments.
Tell your mom when you are hot, cold or in pain.
Essen enzymreicher Nahrung, bei bestehender Metallintoxikation kombinieren mit Bindemitteln
Reasnable price of treatment thanks to the government
help once diagnosed
help once diagnosed
The support of my family helps me through my bad days.
Tens machine - I move it around my body to Change pain messages to brain.
Knowing I am not alone in this struggle
Having people to talk to that understand