Since my Fabry Disease has caused hypohidrosis (I don't sweat enough) the best exercise I can think to get is to swim laps. My cardiologist says I have to exercise at least 3 times per week for at least 30 minutes since my heart is a use it or lose it muscle.
Be sure to exercise enough to get your heart rate elevated but not so much as to need medical assistance. Only swim with a lifeguard on duty and make others aware if you are experiencing any distress.
Warning: I am not a doctor and these statements are anecdotal and as such you should consult with your physician(s) prior to accepting any statement herein.
Always advisable, within the possibilities of each one.
I walk and before it was something of a gym, to tone the muscles especially of the back, to combat neck pain.
Was not diagnosed till my 3rd stroke at age 34. Now 38 years old total of 6 strokes. The last stroke was February 2, 2016. Was on the right side where the others have been on the left. I actually feel better than prior. My eye site is better as well ...
1980's- gastro issues/ burning hands and feet. Told females weren't affected so couldnt be Fabry's. Dad diagnosed in 1960's so I was tested at birth and always knew "carrier!"
Dad had kidney/ strokes. Sister, 2 nephew and 1 niece with Fabrys.
Hav...
Born and raised in Tokyo. I also have an American cidesin ship because my mother is American.
I am a university student now.
I get my treatment once in 2 weeks. Don't have much difficulty in Daly life but I can't exersis alot do to my Simpsons of h...
I was diagnosed in 2014 and started ERT in April 2015 for fabry. It has signicantly affected my heart, which is enlarging. Hopefully treatments will arrest this and maybe even improve it. I am living a good life and am very grateful for the tre...
I am the only person in my family to have Fabrys. I was diagnosed by my optician. It's ice to have a name to this disease as I have lived with it since I was 5 years of age. I have a mutant gene, so Fabrys starts with me and ends with me. I'm under t...