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Which advice would you give to someone who has just been diagnosed with Factor V Leiden?
See some advice from people with experience in Factor V Leiden to people who have just been diagnosed with Factor V Leiden
Learn about your disorder.
Posted May 4, 2017 by Jennifer 1000
Have a good cry. Share the news with those you love so they can support you. Talk openly with Dr. About tour feelings.Live in the moment and be thankful you are there.
Posted May 4, 2017 by Dawn B 1000
Educate yourself. There are still many doctors that don't know a lot about it. Find yourself a good hematologist and read what you can about the mutation. Knowing what medications you can take, what signs to look out for and knowing how to help your doctor help you manage your mutation will make all the difference.
If I had known more about my diagnosis in the beginning I could have been more aware of my diet and not spent so much time trying to figure out why my inr kept changing so drastically.
If I had known more about my diagnosis in the beginning I could have been more aware of my diet and not spent so much time trying to figure out why my inr kept changing so drastically.
Posted May 11, 2017 by Stacy 2650
It's not the end of the world! It is manageable, and you can live a happy lot life with this diagnosis. Just relax! And take it one step at a time.
Posted May 16, 2017 by Rachael 1000
This is the people that just got diagnosed with Factor V Leiden the one thing you need to know is don't panic most people get one or two and that's it their entire life maybe you don't have to take anticoagulants your entire life. Keep in contact with the hematologist your primary care maybe a vascular surgeon if you do get clots a lot in the lower extremities but don't panic panicking only causes problems stay calm educate yourself read up on what factor V Leiden is how it is passed on from a parent and the statistics on how Factor V Leiden is 1 in 100,000 people in your chances are 8 to 10% higher than somebody that doesn't have the gene mutation to get a clot that is not that bad
Posted Dec 28, 2017 by Timothy Andrew McDonough 850
The initial scare of the whole diagnoses will subside but never really goes away. Sometimes I feel like a ticking time bomb but you must have faith in your doctors and the good Lord to get thru it on a daily basis.
People will give you advise but the best thing I would suggest is to find a good forum and read similar stories. Those stories were very helpful for me: https://www.stoptheclot.org/category/stories/patient-stories
I also found some Facebook pages where the members share this common diagnosis: https://www.facebook.com/groups/48402920923/
People will give you advise but the best thing I would suggest is to find a good forum and read similar stories. Those stories were very helpful for me: https://www.stoptheclot.org/category/stories/patient-stories
I also found some Facebook pages where the members share this common diagnosis: https://www.facebook.com/groups/48402920923/
Posted Dec 28, 2017 by Barbara 4050
