Me

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_The truth is, I have so many conditions that I don't know where to begin. I don't know if you can see how many surveys I have completed, but it's more than ten and I can't even find a lot of them. Therefore, I am just going to list the most relevant and you can ask me any questions you wish_

 

_1.  Fibromyalgia_

_2.  Chronic Fatigue Syndrome_

_3.  Ehlers-Danlos Syndrome_

_4.  Dysautonomia (POTS)_

_5.  Gastroparesis_

_6.  Narcolepsy_

7.  Chronic Recurrent Epstein-Barr Virus (what precipitated, and I believe caused, the Fibromyalgia and Chronic Fatigue Syndrome)

 

_I have had most of these disorders, along with the rest for over thirty years. I've seen countless doctors. And as a nurse, I have even been able to order tests that the doctors who did not take me seriously, failed to do, in order to get a diagnosis on my own.  I have finally found a wonderful rheumatologist who is also board certified in Internal Medicine. He has treated me for the last fifteen years and since he knows that I was a nurse before having to go on disability, he knows that I do my research and he usually takes my suggestions on new treatments. I'm already disabled, so what do we have to lose, right?  Not like being more tired or having the inability to think clearly sometimes is going to affect my job. Not saying that these things will happen, but they are always possible side effects to pretty much every drug out there...along with constipation, diarrhea, hypertension, hypotension, sleepiness, insomnia, weight loss and weight gain, among others. Ridiculously contradictory, but they have to cover their bases, I suppose. _

 

_So anyway, I have tried just about every treatment there is for just about every condition I have. So go ahead and ask any questions you may have, do not be afraid or embarrassed to ask anything. No judgement here._