Older Diagnosed

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I am older than most others I know with EDS because of being miss diagnosed and overlooked. I knew there was something wrong with me from childhood and my family health wise but was passed from one Dr. to the next with no answers. Now I know not just any Dr. will be a correct fit for us. We need a true sypatheyic medical support system. Even close family can be disbelievers that EDS is real and effects you in the way it does.

Daily I continually find new related health issues such as; TMJ, Exphoria, Fibromyalgia, Migraines, IBS, Hyperthyroidism, DDD, Myoclonus Seizers, CFS, Dislocations and Sublaxing, SAD, Trigeminal neuralgia, Bulging Discs, Osteoarthritis, IBS, Allergies with dry mouth and eyes, Temperature intolerance and still pending Chiari, MFTHR, Dystotinomia POTS, Etc. it's a never ending battle 

I have met some beautifu Zebra's and started a suport group on meet up.com plus Facebook. I have witnessed news of those who have lost their battle or just could not handle the news of being diagnosed or living on by taking their own life to stop the emotional and//or physical pain. 

Today I sublaxed my hip and was in a lot of pain so I had to take medication just to get out of bed to use the nessesary. Afterwards I had to take a rest in bed for rest of the day to keep my hip from going out of socket. It may seem to others I live a lazy life but I would much rather be working than live through physical and emotion pain like this.