What signs or symptoms may make you suspect you may have Fibrosing Mediastinitis. People who have experience in Fibrosing Mediastinitis offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

▷ How do I know if I have Fibrosing Mediastinitis?

Stories of Fibrosing Mediastinitis

FIBROSING MEDIASTINITIS STORIES

VIEWS

BY

I have been living with this disease for nearly 12 years. I have 7 stents in my super vena cava (SVC) I started out getting 3 then after some more symptoms came back I have gotten 4 more. I see Dr Doyle and Dr Loyd at Vanderbilt in Nashville TN When...

660

by Melissa McMurray

HISTOPLASMOSIS RELATED FIBROSING MEDIASTINITIS

My son Cody was diagnosed with this awful disease the Fall of 2011 after months of misdiagnosis. He had just graduated high school in 2010 & started his first year in college to become a game designer. His symptoms started shortly after his 19th b...

445

3/17/18, 11:24 PM by Sharon

POST HISTOPLASMOSIS FIBROSING MEDIASTINITIS

I was diagnosed with histoplasmosis in December 2016 after a misdiagnosis of cancer. It started with a small nagging chest pain and cough and has evolved into so much more. I have a very large mass that sits on my bronchial tree and all of the surrou...

445

10/5/17, 3:01 PM by Jennifer

THE LONG ROAD OF UNCERTAINTY

I began to have a vibrating sensation in my chest that "felt like something bad was in my chest" whenever I would cough. And I had been having a dry cough for a while. I knew something was off, and I knew something bad was happening. I am a doctor. I...

347

12/31/17, 2:13 PM by Amy

LIVING WITH FM

Histoplasmosis infection circa 1983. 16 years old. 50 now. Very painful disease. Pulmonary hypertension. Enlarged heart. Limited in cardiovascular abilities extremely. I had a pulmonary shunt with my left Pulmonary vein in 1997(moved the posi...

How do I know if I have Fibrosing Mediastinitis?