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What is the life expectancy of someone with Fibrous Dysplasia?
Life expectancy of people with Fibrous Dysplasia and recent progresses and researches in Fibrous Dysplasia
Normal
Posted May 22, 2017 by Angie 1100
Our life expectancy is the same as anyone however I am still unsure to as how I will be later in life.
Posted Jun 9, 2017 by Lisa Hill 2050
Normal life expectancy
Posted Jul 21, 2017 by Debra 2000
All depends where and if there is any endocrine involvement, MAS
Posted Sep 9, 2017 by Debby 1200
It depends on the person. Some people can live normal but others might be sad or in lots of pain by it.
Posted Oct 7, 2017 by Kiesha brown 3050
I remembered my mother telling me I have cancer though I think it was misinterpreted. From what I read online, I have a tumor, but not cancer. I remembered one of my doctors telling me that I can only live until 9 which never happen, but pains became more prominent after that though. I plan to have a checkup and make sure to have them regularly once I reached college and can only live on my own. So you can live long unless it is too severe. I am not updated with scientific progress or researches but based on my experience, a lot of things can endanger your life if you have FD and you live with no caution. A simple misstep when I am going down from a vehicle caused a fracture in my legs that stopped me to be mobile for three months. I remembered my doctors highlighting my FD in the skull because it affected my brain already, some part of it stopped functioning if I was right. You can live as long as you want, just with caution. It can endanger your life anytime.
Posted Oct 23, 2020 by anna_d09 2500
I believe it’s about the same, unless you get a cancerous tumor. Stress and pain doesn’t help though.
Posted Jan 17, 2021 by Emmy 2250
Well I can only speak from my experience having Poly FD, no MAS. Many fractures and to many surgeries to count. I'm feeling it now at 50, which I never thought I would reach. But I was hard on my body when I was younger, very angry about this, sad and self-hating. I did everything you shouldn't do, just to say I could and scare my poor mom almost to death.
Now when you think of living till 70 or 80, or 90... I think we all have different ideas of what living is. some wont call it life if they are restricted to barley getting around without mad pain. Some dont mind at all. FD isn't going to stop anyone from existing, unless the FD swells and squeeze's out a vein or artery. My advice to anyone listening, take care of yourself, recognize that you do have this disease but dont let that define, but do give yourself limits. Now dont be to cautious, you need to experience life and no contact your bones get softer so to speak. I rode skateboards, wrestled, weightlifting "which I am getting back into soon". But if you're younger, please take care of your feet and legs..wake up and stretch every day, it will pay off I promise. I know because I didn't and now it's very difficult.
Good luck everyone, good bless.
Joseph
Now when you think of living till 70 or 80, or 90... I think we all have different ideas of what living is. some wont call it life if they are restricted to barley getting around without mad pain. Some dont mind at all. FD isn't going to stop anyone from existing, unless the FD swells and squeeze's out a vein or artery. My advice to anyone listening, take care of yourself, recognize that you do have this disease but dont let that define, but do give yourself limits. Now dont be to cautious, you need to experience life and no contact your bones get softer so to speak. I rode skateboards, wrestled, weightlifting "which I am getting back into soon". But if you're younger, please take care of your feet and legs..wake up and stretch every day, it will pay off I promise. I know because I didn't and now it's very difficult.
Good luck everyone, good bless.
Joseph
Posted Aug 16, 2022 by J 200
