What is the prognosis if you have Fibrous Dysplasia? Quality of life, limitations and expectatios of someone with Fibrous Dysplasia.

▷ Fibrous Dysplasia prognosis

Stories of Fibrous Dysplasia

FIBROUS DYSPLASIA STORIES

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HELLO, MY NAME IS MICHELLE, i AM 37, MY BODY HAS A LONG LIST OF UNIQUE AILMENTS. i BELIEVE MANY STEM FROM MY HAVING mCcUNE ALBRIGHT SYNDROME. i ALSO HAVE FIBROUS DYSPLASIA IN MANY BONES IN MY SKUL AND SUSPECT IN MY ANKLE AND SOME RIBS, i HAVE SCOLI...

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1/31/16, 12:05 AM by Michelle Inks

ATHLETE'S JOURNEY WITH FIBROUS DYSPLASIA

I was diagnosed when I was in the 6th grade. It was my birthday when they did the x-ray. They sent me to the Oncologist to confirm it was FD and not cancer. I have FD in my Left Tibia. As of now, I have had 11 surgeries outpatient and inpatie...

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12/22/15, 6:20 PM by Alexa

DIAGNOSED AT 40 YEARS OLD

After suffering with chronic pain for almost 2 years I finally got a diagnosis of Fibrous Dysplasia of the skull. I have a very large lesion in the back of head that goes all the way across the occipital bone. Doctor explained that it wraps around my...

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12/19/15, 1:33 AM by Sandy

FD SUCKS!

Hi all. I've joined this map but it's my son who has PFD. Found out when his leg broke at age 8. Long hard struggle ever since but knowing we're not alone has made it easier. Daniel is soon 12 & struggling at secondary school but has some fab friends...

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2/21/16, 5:36 AM by Helen Armstrong

MY BLOG

www.nouw.com/deqora

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2/23/16, 4:54 AM by Sandra

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Fibrous Dysplasia forum

FIBROUS DYSPLASIA FORUM

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FIBROUS DYSPLASIA

I was wondering if there was a spot to clarify the type of FD we have. There is monostotic, polyostotic and McCune-Albright syndrome with polyostotic (which i have) ? I did not see McCune-Albright syndrome on the list.

Fibrous Dysplasia prognosis