22

Fibrous Dysplasia prognosis

What is the prognosis if you have Fibrous Dysplasia? Quality of life, limitations and expectatios of someone with Fibrous Dysplasia.

Fibrous Dysplasia prognosis

Fibrous dysplasia is a rare bone disorder that primarily affects children and young adults. It is characterized by the abnormal growth of fibrous tissue in place of normal bone, leading to weakened and deformed bones. The prognosis of fibrous dysplasia varies depending on several factors, including the extent and location of the disease, the age of onset, and the presence of associated complications.



In general, the prognosis for individuals with fibrous dysplasia is relatively good. Many people with this condition lead normal lives with minimal symptoms and complications. However, the prognosis can be more challenging for those with severe or extensive disease involvement.



The long-term outlook for individuals with fibrous dysplasia largely depends on the specific complications that may arise. One of the most common complications is fractures, which can occur due to weakened bones. Fractures can lead to pain, disability, and functional limitations. Additionally, fibrous dysplasia can cause bone deformities, such as uneven limb lengths or facial asymmetry, which may require surgical interventions for correction.



Another potential complication of fibrous dysplasia is the development of secondary conditions. For example, individuals with fibrous dysplasia may have an increased risk of developing endocrine disorders, such as precocious puberty or hormonal imbalances. These conditions require careful monitoring and management by healthcare professionals.



It is important for individuals with fibrous dysplasia to receive regular medical follow-up and monitoring. This allows healthcare providers to assess disease progression, manage symptoms, and address any potential complications promptly. Treatment options for fibrous dysplasia may include medications to manage pain, physical therapy to improve mobility and strength, and surgical interventions when necessary.



Overall, with appropriate medical care and management, individuals with fibrous dysplasia can lead fulfilling lives. It is crucial to work closely with healthcare professionals to ensure optimal outcomes and quality of life for those affected by this condition.


Diseasemaps
2 answers
Well, my prognosis was quite, though not completely, wrong. I would love to have a checkup but this time with myself. I expect life to be harsh to me, and maybe it is with this cruel world, but maybe I am lucky enough that I can say I am happy with my life as it is. FD might be chronic, though I think my case is more progressive. It gets better, though, especially with family and friends being there for you.

Posted Oct 23, 2020 by anna_d09 2500

Fibrous Dysplasia prognosis

Fibrous Dysplasia life expectancy

What is the life expectancy of someone with Fibrous Dysplasia?

10 answers
Celebrities with Fibrous Dysplasia

Celebrities with Fibrous Dysplasia

2 answers
Is Fibrous Dysplasia hereditary?

Is Fibrous Dysplasia hereditary?

12 answers
Is Fibrous Dysplasia contagious?

Is Fibrous Dysplasia contagious?

9 answers
Natural treatment of Fibrous Dysplasia

Is there any natural treatment for Fibrous Dysplasia?

7 answers
ICD9 and ICD10 codes of Fibrous Dysplasia

ICD10 code of Fibrous Dysplasia and ICD9 code

8 answers
Living with Fibrous Dysplasia

Living with Fibrous Dysplasia. How to live with Fibrous Dysplasia?

7 answers
Fibrous Dysplasia diet

Fibrous Dysplasia diet. Is there a diet which improves the quality of life ...

9 answers

World map of Fibrous Dysplasia

Find people with Fibrous Dysplasia through the map. Connect with them and share experiences. Join the Fibrous Dysplasia community.

Stories of Fibrous Dysplasia

FIBROUS DYSPLASIA STORIES
Fibrous Dysplasia stories
HELLO, MY NAME IS MICHELLE, i AM 37, MY BODY HAS A LONG LIST OF UNIQUE AILMENTS. i BELIEVE MANY STEM FROM MY HAVING mCcUNE ALBRIGHT SYNDROME. i ALSO HAVE  FIBROUS DYSPLASIA IN MANY BONES IN MY SKUL AND SUSPECT IN MY ANKLE AND SOME RIBS, i HAVE SCOLI...
Fibrous Dysplasia stories
I was diagnosed when I was in the 6th grade.  It was my birthday when they did the x-ray.  They sent me to the Oncologist to confirm it was FD and not cancer.  I have FD in my Left Tibia.  As of now, I have had 11 surgeries outpatient and inpatie...
Fibrous Dysplasia stories
After suffering with chronic pain for almost 2 years I finally got a diagnosis of Fibrous Dysplasia of the skull. I have a very large lesion in the back of head that goes all the way across the occipital bone. Doctor explained that it wraps around my...
Fibrous Dysplasia stories
Hi all. I've joined this map but it's my son who has PFD. Found out when his leg broke at age 8. Long hard struggle ever since but knowing we're not alone has made it easier. Daniel is soon 12 & struggling at secondary school but has some fab friends...
Fibrous Dysplasia stories
www.nouw.com/deqora

Tell your story and help others

Tell my story

Fibrous Dysplasia forum

FIBROUS DYSPLASIA FORUM
Fibrous Dysplasia forum
I was wondering if there was a spot to clarify the type of FD we have.  There is monostotic, polyostotic and McCune-Albright syndrome with polyostotic (which i have) ?  I did not see McCune-Albright syndrome on the list. 

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map