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Which are the symptoms of Fibrous Dysplasia?

See the worst symptoms of affected by Fibrous Dysplasia here

Fibrous Dysplasia symptoms
9 answers
Pain
Sleeplessness
Agitation
Anxiety

Posted May 22, 2017 by Angie 1100
The Pain is the worst symptom of fibrous Dysplasia

Posted Jun 9, 2017 by Lisa Hill 2050
Bone pain, bones breaking

Posted Jul 21, 2017 by Debra 2000
Disability secondary to growth and pain

Posted Sep 9, 2017 by Debby 1200
Being tired a lot and the pain

Posted Oct 7, 2017 by Kiesha brown 3050
For me it started of with pain in my ears face and sinuses. If you get swelling in the jaw or ears then that is another symptom. The pain is unbearable and tends to happen at night but may be in daytime too. It also depends where you have it I have it in my skull.

Posted Jan 24, 2020 by Jacquie goosetree 1300
My FD is mostly in my skull and legs, and I was later diagnosed with scoliosis. I want to get rid first of scoliosis because it made me stay in my height, which is for a kid honestly. My FD affected almost all of my physical activities. Early accidents caused my parents and doctors to prohibit me to do a lot of things such as playing sports. I also need to be careful at all times because I already had fractures in my legs and already had some issues with my skull. It made me used to headaches that sometimes it's quite a miracle to not have one in a day or week. Walk and some moving is all I can do as an exercise, and I can easily be tired. At least I can walk, right? Body pains also, especially in cold times.

Posted Oct 23, 2020 by anna_d09 2500
Pain, limp, hurts to put pressure on leg, can’t lift leg

Posted Jan 17, 2021 by Emmy 2250
Translated from portuguese Improve translation
I believe that the worst symptoms are the pain and the limitation that the dysplasia can cause to the wearer, particularly when located in the lower limbs.
When she is not present in the head, in addition to the pain also have the question of aesthetics.

Posted Jun 10, 2017 by Pietro Buono 300

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World map of Fibrous Dysplasia

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Stories of Fibrous Dysplasia

FIBROUS DYSPLASIA STORIES
Fibrous Dysplasia stories
HELLO, MY NAME IS MICHELLE, i AM 37, MY BODY HAS A LONG LIST OF UNIQUE AILMENTS. i BELIEVE MANY STEM FROM MY HAVING mCcUNE ALBRIGHT SYNDROME. i ALSO HAVE  FIBROUS DYSPLASIA IN MANY BONES IN MY SKUL AND SUSPECT IN MY ANKLE AND SOME RIBS, i HAVE SCOLI...
Fibrous Dysplasia stories
I was diagnosed when I was in the 6th grade.  It was my birthday when they did the x-ray.  They sent me to the Oncologist to confirm it was FD and not cancer.  I have FD in my Left Tibia.  As of now, I have had 11 surgeries outpatient and inpatie...
Fibrous Dysplasia stories
After suffering with chronic pain for almost 2 years I finally got a diagnosis of Fibrous Dysplasia of the skull. I have a very large lesion in the back of head that goes all the way across the occipital bone. Doctor explained that it wraps around my...
Fibrous Dysplasia stories
Hi all. I've joined this map but it's my son who has PFD. Found out when his leg broke at age 8. Long hard struggle ever since but knowing we're not alone has made it easier. Daniel is soon 12 & struggling at secondary school but has some fab friends...
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Fibrous Dysplasia forum

FIBROUS DYSPLASIA FORUM
Fibrous Dysplasia forum
I was wondering if there was a spot to clarify the type of FD we have.  There is monostotic, polyostotic and McCune-Albright syndrome with polyostotic (which i have) ?  I did not see McCune-Albright syndrome on the list. 

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