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What are the best treatments for Fibrous Dysplasia?

See the best treatments for Fibrous Dysplasia here

Fibrous Dysplasia treatments
8 answers
Individual treatments for each person. If you calm yourself by breathing through the pain sometimes a bath or shower can help. Different days mean heat or cold can help. My tens unit will sometimes help. There is nothing that helps consistently.

Posted May 22, 2017 by Angie 1100
Although there is no specific medical therapy for fibrous dysplasia, studies have shown decreased pain after treatment with bisphosphonates, which inhibit bone resorption by virtue of their action on osteoclasts. The most common drug therapy is intravenous (IV) pamidronate.

Posted Jun 9, 2017 by Lisa Hill 2050
None..cold packs, heat for pain

Posted Jul 21, 2017 by Debra 2000
Pain relief options using as many non narcotic options prior to narcotic with surgery as last option to be used only to preserve function

Posted Sep 9, 2017 by Debby 1200
Their is no cure for fibrous dysplasia, however you can have surgery for it, the surgery might or might not work depending on the person it can make it better or worse. Another treatment can be pain medicine that is prescribed by your doctor

Posted Oct 7, 2017 by Kiesha brown 3050
I believe surgery and therapy, and some pain meds. My family doesn't have that much money for my treatment though, but pain meds help a lot, especially in colder times when I experience random body pain or when I need to do something tiring.

Posted Oct 23, 2020 by anna_d09 2500
Surgery if you have a tumor. I didn’t receive much treatment since not much is known about this disease

Posted Jan 17, 2021 by Emmy 2250
Translated from portuguese Improve translation
Has no cure, but the bifosfanatos help reduce the pain.

Posted Jun 10, 2017 by Pietro Buono 300

Fibrous Dysplasia treatments

Fibrous Dysplasia life expectancy

What is the life expectancy of someone with Fibrous Dysplasia?

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Celebrities with Fibrous Dysplasia

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Is Fibrous Dysplasia hereditary?

Is Fibrous Dysplasia hereditary?

12 answers
Is Fibrous Dysplasia contagious?

Is Fibrous Dysplasia contagious?

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ICD9 and ICD10 codes of Fibrous Dysplasia

ICD10 code of Fibrous Dysplasia and ICD9 code

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Natural treatment of Fibrous Dysplasia

Is there any natural treatment for Fibrous Dysplasia?

7 answers
Living with Fibrous Dysplasia

Living with Fibrous Dysplasia. How to live with Fibrous Dysplasia?

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Fibrous Dysplasia diet

Fibrous Dysplasia diet. Is there a diet which improves the quality of life ...

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World map of Fibrous Dysplasia

Find people with Fibrous Dysplasia through the map. Connect with them and share experiences. Join the Fibrous Dysplasia community.

Stories of Fibrous Dysplasia

FIBROUS DYSPLASIA STORIES
Fibrous Dysplasia stories
HELLO, MY NAME IS MICHELLE, i AM 37, MY BODY HAS A LONG LIST OF UNIQUE AILMENTS. i BELIEVE MANY STEM FROM MY HAVING mCcUNE ALBRIGHT SYNDROME. i ALSO HAVE  FIBROUS DYSPLASIA IN MANY BONES IN MY SKUL AND SUSPECT IN MY ANKLE AND SOME RIBS, i HAVE SCOLI...
Fibrous Dysplasia stories
I was diagnosed when I was in the 6th grade.  It was my birthday when they did the x-ray.  They sent me to the Oncologist to confirm it was FD and not cancer.  I have FD in my Left Tibia.  As of now, I have had 11 surgeries outpatient and inpatie...
Fibrous Dysplasia stories
After suffering with chronic pain for almost 2 years I finally got a diagnosis of Fibrous Dysplasia of the skull. I have a very large lesion in the back of head that goes all the way across the occipital bone. Doctor explained that it wraps around my...
Fibrous Dysplasia stories
Hi all. I've joined this map but it's my son who has PFD. Found out when his leg broke at age 8. Long hard struggle ever since but knowing we're not alone has made it easier. Daniel is soon 12 & struggling at secondary school but has some fab friends...
Fibrous Dysplasia stories
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Fibrous Dysplasia forum

FIBROUS DYSPLASIA FORUM
Fibrous Dysplasia forum
I was wondering if there was a spot to clarify the type of FD we have.  There is monostotic, polyostotic and McCune-Albright syndrome with polyostotic (which i have) ?  I did not see McCune-Albright syndrome on the list. 

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