Always know that I can do arts and crafts to distract myself
NAUSEA MEDS!!!
Never give up, try everything and having a tube is not a failure
can't say what really works yet except for above
Increasing my Water Intake
I have stomach pain all the time!
Marijuana has helped me a lot. especially since I can't eat soild food
Marijuana has helped me a lot. especially since I can't eat soild food
Various spoonie support groups online and on facebook have been vital for information and keeping my spirits up. Its great to have other people that understand exactly what you're going through.
started using Essential oils
Organic food & products
Finding good Doctors is so important.
Online support groups - G-Pact.
Regular appointments with my Physcologist
Demerol is the only pain medication I am not allergic to, and it does not seem to affect my digestive system negatively. Whether I am taking Demerol, or not taking it, my digestive pace remains the same. Demerol used to be used for Duodenum spasms.
Understanding GP
family
Staying positive
Sublingual zofran
WHEN I AM HAVING A BAD DAY....I JUST GET ANGRY....CRY IT OUT.....HOLDING IT IN MAKES IT WORSE FOR ME
Reading the Bible and prayer.
Excellent diagnostic insights from Minnesota Gastroenterology staff. "Spot-on" understandings. Dietician is a part of the team.
Finding a dr that is trying to make me feel better
Paradigm Shift
Friends and family support.
The support of fellow sick people
Family and friends understanding the disease better
Having my son to live for.
My mom and all her support has been the biggest help with dealing with Gastroparesis.
Daily injections of. Cyclizine/ondansatron
My doctors knowledge
Eliminating stress that wasn't necessary.
Hope. Never giving up the hope for a cure, or that the tumors will continue to shrink from the chemo. Without hope, we have nothing.
Meds help
Medical retirement due to nausea and vomiting
Godly Friends and living for Christ!
Strict diet
Stopped meds
Stopped meds
Being close to Boston. Beth Israel deaconess hospital.....here I come! I have hope!! Kind of...
Good times don't come back badly. Sic vita fluit, dum stare videtur. (Life flows away as it seems to stay the same.) live today, tomorrow, today is yesterday ❤️
Nature
Nail polish
knowing my blood panel and fixing the vitamins accordingly has helped immensely.
SMAS friends group pages and personal contacts. It is very difficult for most to understand what SMAS is or does to every part of your life and how it effects your family.
Medication
Advocate for your care and fight, no one else will
Accepting the use of mobility aids (cane, wheelchair, etc)