There are 332 people in the Glycogen Storage Disease map

Do I have Glycogen Storage Disease?

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Glycogen Storage Disease diet

Is there a diet which improves the quality of life of people with Gly...

History of Glycogen Storage Disease

What is the history of Glycogen Storage Disease?

Glycogen Storage Disease sports

Is it advisable to do exercise when affected by Glycogen Storage Disea...


Stories of Glycogen Storage Disease

STORY
Glycogen Storage Disease stories
Merhaba, Oğlumuz doğduktan 2 hafta sonra karaciğerinin büyük olduğunu öğrendik.Böylelikle testler yapılmaya başlandı.Metabolik bir hastalığı olabileceğini söyledi doktorlar.3 aylık olunca karaciğer biyopsisi ol...
Glycogen Storage Disease stories
Neylan was growing well until 12 months of age and she dropped off her growth curve. In addition she started having developmental delays. We were sent to numerous specialists and only diagnosis they could come up with was renal tubular acidosis. But ...
Glycogen Storage Disease stories
My name is Valerie. My first child was diagnosed with 1a February 1994. She died of complications March 2006. In addition, I have two other children with 1a. My son, Austin, is 17 and my daughter, Arielle, that is 9. We have lived with GSD for 21 yea...
Glycogen Storage Disease stories
Glycogen Storage Disease stories
I also hve 4 brother with GSD type 6

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Glycogen Storage Disease forum

QUESTION
Question 116
I need to share information about Fanconi Bickel syndrome with others

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Statistics of Glycogen Storage Disease

7 people with Glycogen Storage Disease have taken the SF36 survey. Mean of Glycogen Storage Disease is 1624 points (45 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Glycogen Storage Disease