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  2. Glycogen Storage Disease
  3. Advice
I sit in the Sun daily. This helps warm me up because I am always cold and my muscles stiffen up and ache.
by Mary
Lyrica 75mg morning and night got me out of my scooter & walking stick, I still have heeps of problems
by Rhonda Hunt
myozyme ERT every 2 weeks
by Becky walton
Bipap
by Robert
I've had great caring and thoughtful drs and a wonderful hospital nearby
by Mary
As a parent, remaining positive and accepting. GSD is our way of life.
by Myers family
As a parent, remaining positive and accepting. GSD is our way of life.
by Myers family
Biweekly Enzyme Replacement Therapy - Lumizyme!!!
by Jesse
Cornstarch and protein powder 7 times a day
by Neylan Rhyne
Prof.David Weinstein and Dr. Ulrike Steuerwald brought me back to life (......and my wife)
by Martin
Centrum Kids
by Thaís
My fathers fortnightly treatment appears to have slowed progression a little
by Kelly
a large dinner
by Caroline
I have been fighting this disease with very little doctors input until the last 15 years!
by Shelly
Ser cuidada
by Cidamaiá
Bebeklik zamanlarımız çok zordu şimdiye göre.Anne baba olarak acemiydik.Ve O nun bünyesi daha zayıftı
by Hüseyin Emir
Септилин, дает энергию и помогает бороться с вирусными инфекциями, экстракт артишока помогает снижать АСТ и АЛТ
by Анна
Loads of protein
by John O'Brien
http://www.glycogenoses.org/
by Patrice
I am the Président of AFG
by Claude
http://www.glycogenoses.org/
by Florence
AFG - http://www.glycogenoses.org/ - Glycogen storage Association AFG French group
by Anne
Eating Healthier. (High protein, low carb, avoid sugar and junk food)
by Addisyn
Diet - very low sugar, dairy free, gluten free
by Linda
My parents full support
by Debbie
Three months on calcium and vit D supplement made her walk
by Amaka
Getting a diagnosis.
by Ayla
Cornflour has changed my life
by Brooke
Cornstarch
by GAR
Proper diet, treatment
by Chris
My mom supports me
by Judith for my daughter mariah
My daughters beaming smile
by Jasmin reeson
Regelmäßig Sport
by Silke
Acompanhamento médico Hospital Santa Maria
by Carla
Controle glicêmico diário
by Pedro
hello to you from Russia
by Ksenya
I try and not think of a long range future.
by Mary
I was doing fathers, I now have a neuro stimulator put into my butt and the wire is on the S5 that controls Bladder & bowel
by Rhonda Hunt
help and support from family and friends
by Becky walton
Enzyme Replacement therapy
by Robert
Trusting my instincts and that of my children. I don't have a medical degree but I know my children.
by Myers family
Trusting my instincts and that of my children. I don't have a medical degree but I know my children.
by Myers family
My mom advocates for me.
by Jesse
High protein very low carb diet
by Neylan Rhyne
Protein diet, Ketones, Glycosade, Facebook
by Martin
Maizena
by Thaís
My father is very upbeat despite his suffering
by Kelly
a good night's sleep or afternoon nap
by Caroline
I never give up!
by Shelly
Melhora doenças meus filhos
by Cidamaiá