Help us to help more people
  2. Glycogen Storage Disease
  3. Advice
Agız yoluyla beslenmek istemiyor.Sürekli burundan sonda ile besleniyor oğlumuz.Hep sıvı beslendiği için beslenme vakitlerimiz çok sık ve çok zor yorucu
by Hüseyin Emir
положительные эмоции от любви и самореализация
by Анна
Sleep
by John O'Brien
french organisation against gsd
by Patrice
My Daughter is type 1 B
by Claude
ERN : MetabERN
by Anne
Daily Exercise.
by Addisyn
Enzymes, Prebriotics, Vitamins + minerals
by Linda
cornstarch
by Debbie
Joining the GSD group on Facebook has actually given more insight and made me less worried
by Amaka
Eating frequently.
by Ayla
Regular carbohydrates
by GAR
Family Support
by Chris
I try to occupy my mind
by Judith for my daughter mariah
High fat high protein low carb diets
by Jasmin reeson
Fasten
by Silke
Consumo do amido de milho(maizena) nos horários demarcados
by Pedro
I try and act like nothing is wrong with me in a social setting so I can fit in better.
by Mary
I have just had one go of Emmett technique, I had a good result 1st go it opens up locked muscles, GOOGLE it to see
by Rhonda Hunt
good support network on Facebook from fellow pompe patients
by Becky walton
Physical Therapy
by Robert
Know who you can count on for support. It takes a special friend.
by Myers family
Know who you can count on for support. It takes a special friend.
by Myers family
Aqua Therapy
by Jesse
An awesome nephrologist at Shands that works with DrWeinstein
by Neylan Rhyne
unknown subtype of GSD IX (adult form)
by Martin
Alimentação
by Thaís
The family input and understanding has been biggest help
by Kelly
eating first thing
by Caroline
I have found essential oils and the benefits they give me are awesome!
by Shelly
Saúde Vitória
by Cidamaiá
Gen tedavisini bekliyoruz umut ve sabırla
by Hüseyin Emir
белковая пища помогает мне лучше чувствовать себя
by Анна
Metering
by John O'Brien
EURORDIS - French Alliance of rares diseases - MRIS
by Anne
Teaching early in age responsibility. Making her own cornstarch, checking glucose, etc.
by Addisyn
Exercise program
by Linda
Believing there will be a cure in my lifetime
by Debbie
Significantly improvement with her diet and cornstarch
by Amaka
Having my mom and dad take good care of me!
by Ayla
Lucozade with sport SOS if hypo
by GAR
Constantly looking for ways to improve quality of life
by Chris
The doctors telling me what I really had
by Judith for my daughter mariah
Staying out of hospital
by Jasmin reeson
Mein Sohn und Partner, der mich unterstützt
by Silke
I use a translator for communication
by Ksenya