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What are the best treatments for Glycogen Storage Disease?

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Glycogen Storage Disease treatments
5 answers
Currently cornstarch, protein and glycosade are used if the patient is over 2 and can tolerate it. For some continuous night feeds are used. This is for type 3.

Posted Mar 1, 2017 by Shelly 1000
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Cornstarch and proteins in our case

Posted Mar 11, 2017 by Pepa 1000
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Enzyme Replacement therapy
Glicogenose type II or Disease Pompe uses the enzyme Alpha-glucosidase acid recombinant human every 2 weeks

Posted Jul 4, 2017 by 1000
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Enzyme replacement therapy
Bipap

Posted Sep 24, 2017 by Welton Correia Alves 1000
Translated from portuguese Improve translation
Diet hipercaloricas, hipoglicemia é hiperproteica

Posted Oct 14, 2017 by Jakeline Serafim Vieira 1010

Glycogen Storage Disease treatments

Glycogen Storage Disease life expectancy

What is the life expectancy of someone with Glycogen Storage Disease?

10 answers
Celebrities with Glycogen Storage Disease

Celebrities with Glycogen Storage Disease

2 answers
Is Glycogen Storage Disease hereditary?

Is Glycogen Storage Disease hereditary?

3 answers
Is Glycogen Storage Disease contagious?

Is Glycogen Storage Disease contagious?

3 answers
ICD9 and ICD10 codes of Glycogen Storage Disease

ICD10 code of Glycogen Storage Disease and ICD9 code

2 answers
Natural treatment of Glycogen Storage Disease

Is there any natural treatment for Glycogen Storage Disease?

2 answers
Living with Glycogen Storage Disease

Living with Glycogen Storage Disease. How to live with Glycogen Storage Dis...

7 answers
Glycogen Storage Disease diet

Glycogen Storage Disease diet. Is there a diet which improves the quality o...

6 answers

World map of Glycogen Storage Disease

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Stories of Glycogen Storage Disease

GLYCOGEN STORAGE DISEASE STORIES
Glycogen Storage Disease stories
Merhaba, Oğlumuz doğduktan 2 hafta sonra karaciğerinin büyük olduğunu öğrendik.Böylelikle testler yapılmaya başlandı.Metabolik bir hastalığı olabileceğini söyledi doktorlar.3 aylık olunca karaciğer biyopsisi olduk.Ama kesin bir ta...
Glycogen Storage Disease stories
Neylan was growing well until 12 months of age and she dropped off her growth curve. In addition she started having developmental delays. We were sent to numerous specialists and only diagnosis they could come up with was renal tubular acidosis. But ...
Glycogen Storage Disease stories
My name is Valerie. My first child was diagnosed with 1a February 1994. She died of complications March 2006. In addition, I have two other children with 1a. My son, Austin, is 17 and my daughter, Arielle, that is 9. We have lived with GSD for 21 yea...
Glycogen Storage Disease stories
Glycogen Storage Disease stories
I also hve 4 brother with GSD type 6

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Glycogen Storage Disease forum

GLYCOGEN STORAGE DISEASE FORUM
Glycogen Storage Disease forum
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