Hereditary Hemorrhagic Telangiectasia

LONG PEDIGREE OF HHT

I began having nose bleeds at age 5, I wasn't scared because I'd seen so many family members have them. Because they became so bad I was taken to ENTs and Hematologist, where I was actually diagnosed after they examined my father. In 1993 my 2nd chil...

Views: 526 Mar 11, 2016, 8:49 PM by Audrey

HHT OR OSLER WEBER

With 1 in 5000 people, many more don't even know!  The sad thing I have learned about HHT is the lack of knowledge by family physicians.  I was very lucky I have a doctor who is young and learned a small amount about in medical school. I ...

Views: 522 Mar 11, 2016, 4:08 PM by Kevin

GOT DIAGNOSED IN 2010. DON'T KNOW MUCH ABOUT IT. MY MAM KNOWS MORE AS IT WAS ONLY AFTER SHE HAD A STROKE THAT SHE WAS DIAGNOSED WITH IT.

Views: 451 Mar 11, 2016, 3:19 PM by Chris

MOTHER OF...

A young child with HHT. And on the waiting list myself. 

Views: 445 Mar 13, 2016, 9:45 PM by L.

AGING WITH HHT

I started having nosebleeds in my 20's, but it was much later when my cousin informed me HHT runs in our family.  It hasn't slowed me down much, just nuisance nosebleeds, but as I approach 70 they are getting worse.  What I've been doing seems less...

Views: 289 Aug 16, 2017, 5:33 PM by rickp99