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How do I know if I have Hereditary multiple exostoses?

What signs or symptoms may make you suspect you may have Hereditary multiple exostoses. People who have experience in Hereditary multiple exostoses offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Hereditary multiple exostoses?
3 answers
Most of the time HME is Hereditary so one of the parents are affected. They have bony lumps around their body. It is autosomal dominant but it varies from very mild to severe. It all starts when the child is growing up. some small bony tumors can be seen especially around the knee, shoulder, pelvic. Before that pain is the only sign. Almost everybody with HME is diagnosed from 3 to 12.

Posted Nov 30, 2017 by Zahra 1950
You will start to form bumps on your joints being at the your fingers on your knuckles your wrists your elbows your shoulder blades my son has one on his collarbone you can get them on literally any joint hips knees near the knees on the tibia and fibia anywhere

Posted Dec 1, 2017 by Diana 920
Many such as my mother and grandmother had a couple of bumps and hardly noticed, and so it is with most folk If your long bones have many bumps that limit your movement than the situation is obvious even if the name of it takes a bit of work.

If on the other hand, you have it called out by genetic testing or something like that then your case is mild and should not deeply affect your life, but keep an eye out on any children s they might be affected a lot more.

Posted Jul 24, 2020 by Bob D 1200

Do I have Hereditary multiple exostoses?

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World map of Hereditary multiple exostoses

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Stories of Hereditary multiple exostoses

HEREDITARY MULTIPLE EXOSTOSES STORIES
Hereditary multiple exostoses stories
There are many different ways to live your life. There are many different walls put in front of you throughout your life. Some people lose a family member, others a love but few have to battle against themselves and the misfortune of an illness. Havi...
Hereditary multiple exostoses stories
MHE from age 3
Hereditary multiple exostoses stories
Oh dear.... now I have to write a story.
Hereditary multiple exostoses stories
I have "spontaneous" MHE. No one else in my family has been identified as having MHE. We first discovered it when I was 4 years old, and I have had 17 surgeries.  I have actually done really well most of the time and I have a very active life! Most ...
Hereditary multiple exostoses stories
I got HME from my momther and was diagnosed at the early age of three. I'm shot in height and have short arms and legs. I was treated at A.I. DuPont for my entire childhood. The doctors wanted to operate nemourous times, but being scared I refused. W...

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