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Is it easy to find a partner and/or maintain relationship when you have Hidradenitis Suppurativa?

People with experience in Hidradenitis Suppurativa give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Hidradenitis Suppurativa. What are the possible difficulties in having a relationship?

Couple and Hidradenitis Suppurativa

Is it easy to find a partner and/or maintain a relationship when you have Hidradenitis Suppurativa?


Living with Hidradenitis Suppurativa (HS) can present unique challenges, both physically and emotionally. HS is a chronic skin condition characterized by painful, recurrent abscesses and nodules in the sweat glands and hair follicles. While it may impact one's self-esteem and confidence, it does not make finding a partner or maintaining a relationship impossible.


Understanding and Education:


One of the key factors in navigating relationships with HS is ensuring that both you and your partner have a good understanding of the condition. Educating your partner about HS can help them comprehend the challenges you face and foster empathy and support.


Open Communication:


Communication is vital in any relationship, and it becomes even more crucial when dealing with a chronic condition like HS. Openly discussing your feelings, concerns, and limitations can help your partner understand your needs better. It also allows them to provide the necessary support and reassurance.


Building Self-Confidence:


HS can impact self-esteem due to the visible symptoms and potential limitations it imposes. However, building self-confidence is essential in attracting and maintaining a healthy relationship. Focusing on your strengths, engaging in activities you enjoy, and seeking professional help if needed can contribute to a positive self-image.


Supportive Partner:


Having a supportive partner is crucial when living with HS. A compassionate and understanding partner can provide emotional support during flare-ups, assist with wound care, and help you navigate the challenges that may arise. It is important to seek a partner who is willing to learn about your condition and support you through the ups and downs.


Managing Symptoms:


While HS is a chronic condition, there are various treatment options available to manage symptoms and reduce flare-ups. Working closely with healthcare professionals to find an effective treatment plan can significantly improve your quality of life and make it easier to maintain a relationship.


Self-Care and Lifestyle:


Engaging in self-care practices and adopting a healthy lifestyle can positively impact your overall well-being and potentially reduce HS symptoms. This may include maintaining good hygiene, wearing loose-fitting clothing, managing stress levels, and following a balanced diet. Taking care of yourself not only benefits your physical health but also contributes to a positive mindset and increased self-confidence.


Support Networks:


Connecting with others who have HS can provide a sense of belonging and understanding. Support groups, both online and offline, can offer a platform to share experiences, exchange advice, and find emotional support. Engaging in these communities can help you realize that you are not alone and provide insights into how others have navigated relationships while living with HS.


Conclusion:


While living with Hidradenitis Suppurativa may present challenges in finding and maintaining a relationship, it is important to remember that it does not define your worth or ability to have a fulfilling partnership. Open communication, understanding, and support from both yourself and your partner are key. By taking care of your physical and emotional well-being, managing symptoms, and seeking support when needed, you can create a strong foundation for a successful and loving relationship.


Diseasemaps
3 answers
It can be difficauky, but if the person loves you then they'll take all of you even the HS!!! Yeah it can be horrible and painful but they'll be supportive and helpful where they can.

Posted Aug 16, 2017 by Sarahlou9316 600
It is always difficult to find a partner or maintain a relationship, regardless of the circumstances. No, I do not have a partner, but that is mostly by choice. I have read stories on Facebook where people have lost relationships because of HS, but some relationships have also been made stronger. It is always a good idea to be completely honest with someone with whom you are involved. If the person chooses not to be involved because of your illness, it is best for you. Nothing is worse than getting into a relationship with someone without compassion. Don't be discouraged by this: there are still compassionate people out there whose strength will strengthen you. You will find someone. Never give up hope.

Posted Aug 21, 2017 by Penny 2150

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World map of Hidradenitis Suppurativa

Find people with Hidradenitis Suppurativa through the map. Connect with them and share experiences. Join the Hidradenitis Suppurativa community.

Stories of Hidradenitis Suppurativa

HIDRADENITIS SUPPURATIVA STORIES
Hidradenitis Suppurativa stories
It started in 2003 when I got a pilonidal cyst that had to be surgically removed. For the years after, I would deal with flares starting from my thighs and the back of my neck and eventually around the armpits, breasts and leg creases. I was too scar...
Hidradenitis Suppurativa stories
I've had HS since I was 20, and am now 40.  I also had the pilonidal cyst which is very closely related.  I've been to many dermatologists and GPs without any success. Tried many treatments...  I do finally have it under control at this point. �...
Hidradenitis Suppurativa stories
Had recurring boils during late teens/early twenties. Doctors told me it was clogged hair follicles. Had one doctor lance one and not very gently.  I had first surgery in 2008 on a pilonidal cyst. That doctor didn't mention HS, but he left a hole i...
Hidradenitis Suppurativa stories
It can take forever and a whole lot of stubbornness to get a diagnosis. If you know something is wrong keep pursuing the answers, Dr's have become lazy in their diagnostic skills. Keep looking!
Hidradenitis Suppurativa stories
My story began at the age of 13. I had developed pneumonia. Shortly after getting treatment, I started to develop bumps on my inner thighs as well as my labia and vaginal lips. They were almost like pimples, but larger. They would hurt and pop on the...

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Hidradenitis Suppurativa forum

HIDRADENITIS SUPPURATIVA FORUM
Hidradenitis Suppurativa forum
I have a lifetime experience with this disease.  There seems to be emerging evidence that dairy and nightshade vegetables create the conditions for HS proliferation.    I can demonstrate potato's cause an inflamation two hours later...
Hidradenitis Suppurativa forum
I might be reseaving ribuximab or  immune suppressants for a autoimmune  condition but  can't find out if it would make the HS worse, and I don't see the dermo till 2 weeks after the other doctor who'll decide what treatment to put me ...

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