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How do I know if I have Hidradenitis Suppurativa?

What signs or symptoms may make you suspect you may have Hidradenitis Suppurativa. People who have experience in Hidradenitis Suppurativa offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Hidradenitis Suppurativa?
2 answers
Do you have "bumps" that look like boils in the following areas: beneath armpits or breasts, along buttocks, in groin area, neck, back or scalp? Do these bumps refuse to burst or do they leak pus? Do they keep coming back? Do you feel fatigued, even though you have not been very active? Those "boils" are the real key to HS. They will form and reform in the same area or spread to other areas. However, please visit a doctor/dermatologist who is knowledgeable about HS to determine if that is what you have.

Posted Aug 21, 2017 by Penny 2150
Translated from spanish Improve translation
How is it diagnosed?
Currently, the delay in diagnosis is
considerable6.
There is no specific test diagnóstico5.
Is made based on the presence of lesions
typical of the disease, its location
specific and odor, chronicity, recurrence and the
lack of full healing with antibióticos6,8.
Although the diagnosis is based on clinical, sometimes the doctor
you may request additional testing (skin biopsies, cultures
of exudate, imaging tests), which will vary depending on the symptoms
of the patient and if you have other associated diseases.
Currently, a fundamental tool for the diagnosis of the
disease is ultrasound.

Posted Aug 12, 2017 by NAT 1910

Do I have Hidradenitis Suppurativa?

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World map of Hidradenitis Suppurativa

Find people with Hidradenitis Suppurativa through the map. Connect with them and share experiences. Join the Hidradenitis Suppurativa community.

Stories of Hidradenitis Suppurativa

HIDRADENITIS SUPPURATIVA STORIES
Hidradenitis Suppurativa stories
It started in 2003 when I got a pilonidal cyst that had to be surgically removed. For the years after, I would deal with flares starting from my thighs and the back of my neck and eventually around the armpits, breasts and leg creases. I was too scar...
Hidradenitis Suppurativa stories
I've had HS since I was 20, and am now 40.  I also had the pilonidal cyst which is very closely related.  I've been to many dermatologists and GPs without any success. Tried many treatments...  I do finally have it under control at this point. �...
Hidradenitis Suppurativa stories
Had recurring boils during late teens/early twenties. Doctors told me it was clogged hair follicles. Had one doctor lance one and not very gently.  I had first surgery in 2008 on a pilonidal cyst. That doctor didn't mention HS, but he left a hole i...
Hidradenitis Suppurativa stories
My story began at the age of 13. I had developed pneumonia. Shortly after getting treatment, I started to develop bumps on my inner thighs as well as my labia and vaginal lips. They were almost like pimples, but larger. They would hurt and pop on the...
Hidradenitis Suppurativa stories
It can take forever and a whole lot of stubbornness to get a diagnosis. If you know something is wrong keep pursuing the answers, Dr's have become lazy in their diagnostic skills. Keep looking!

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Hidradenitis Suppurativa forum

HIDRADENITIS SUPPURATIVA FORUM
Hidradenitis Suppurativa forum
I have a lifetime experience with this disease.  There seems to be emerging evidence that dairy and nightshade vegetables create the conditions for HS proliferation.    I can demonstrate potato's cause an inflamation two hours later...
Hidradenitis Suppurativa forum
I might be reseaving ribuximab or  immune suppressants for a autoimmune  condition but  can't find out if it would make the HS worse, and I don't see the dermo till 2 weeks after the other doctor who'll decide what treatment to put me ...

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