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Can people with Hidradenitis Suppurativa work? What kind of work can they perform?

See how people with experience in Hidradenitis Suppurativa give their opinion about whether people with Hidradenitis Suppurativa can work and what kind of jobs are more appropriated for people with Hidradenitis Suppurativa

Hidradenitis Suppurativa jobs

Can people with Hidradenitis Suppurativa work?


Hidradenitis Suppurativa (HS) is a chronic skin condition that affects the sweat glands and hair follicles, causing painful, recurrent abscesses and nodules in the affected areas. While HS can significantly impact a person's quality of life, it does not necessarily prevent individuals from working. The ability to work with HS depends on the severity of the condition, the specific symptoms experienced, and the type of work involved.


Types of work for people with Hidradenitis Suppurativa:


1. Sedentary or desk jobs: Individuals with HS who experience less severe symptoms or have good control over their condition may be able to perform sedentary or desk jobs. These jobs typically involve minimal physical activity and allow individuals to work in a comfortable environment.


2. Remote or work-from-home jobs: For individuals with more severe symptoms or frequent flare-ups, remote or work-from-home jobs can be a suitable option. Such jobs provide flexibility and allow individuals to work in a comfortable and controlled environment, minimizing the impact of physical discomfort.


3. Flexible work arrangements: Some employers may offer flexible work arrangements, such as part-time schedules or modified duties, to accommodate individuals with chronic conditions like HS. This can help individuals manage their symptoms while still being able to work.


4. Jobs with limited physical demands: Depending on the severity and location of HS lesions, individuals may be able to perform jobs that involve limited physical demands. Examples include administrative roles, customer service, data entry, writing, graphic design, and other similar occupations.


5. Self-employment or entrepreneurship: Starting a business or working as a freelancer can provide individuals with HS more control over their work environment and schedule. It allows for customization to accommodate their specific needs and limitations.


Considerations for individuals with Hidradenitis Suppurativa:


1. Medical treatment and management: It is crucial for individuals with HS to work closely with healthcare professionals to develop an effective treatment plan. This may involve medications, wound care, lifestyle modifications, and regular follow-ups to manage symptoms and minimize the impact on work.


2. Workplace accommodations: Individuals with HS may benefit from workplace accommodations, such as ergonomic equipment, adjustable seating, or modified workstations, to alleviate discomfort and reduce the risk of exacerbating symptoms.


3. Self-care and stress management: HS can be exacerbated by stress and certain lifestyle factors. It is important for individuals to prioritize self-care, manage stress levels, maintain a healthy lifestyle, and establish a work-life balance to better cope with the condition.


4. Support and understanding: Having a supportive work environment and understanding colleagues can greatly contribute to the well-being and productivity of individuals with HS. Open communication about the condition and any necessary accommodations can foster a positive work experience.


Conclusion:


While Hidradenitis Suppurativa can present challenges, many individuals with the condition are able to work. The type of work that can be performed depends on the severity of symptoms, the ability to manage the condition, and the availability of suitable accommodations. With proper medical management, workplace support, and self-care, individuals with HS can pursue fulfilling careers and lead productive lives.


Diseasemaps
8 answers
They can work normally as long as the affected areas dont become too stressed (e.g walking with the groin area affected). Work should be avoided if and when possible, when there is an active outbreak

Posted Aug 12, 2017 by gregory4312 600
In the UK it's not actually recognised as something you can be off work with and get disability allowance. To my own knowledge I know people including myself that still work full time and power through the uncomfortableness and pains.

Posted Aug 16, 2017 by Sarahlou9316 600
It depends upon their skill and the location of their abscesses. For instance, if lesions are in the groin area, it is difficult to work a sit-down job or one where a person is required to stand or do a lot of walking. If lesions are under armpits, it is difficult to do a job which requires lifting. In many cases, HS is completely debilitating.

Posted Aug 21, 2017 by Penny 2150
I do private Upholstery jobs for clients repair and build. Had HS for 9 years. You need a job where you sit and or stand but be allowed to move at your pace. It still hell but gotta work.

Posted Jul 14, 2022 by David 100
Translated from spanish Improve translation
in the acute phase you can't even walk, the pain is sharp up to the or the abscess to drain

Posted Aug 12, 2017 by NAT 1910
Translated from portuguese Improve translation
Yes. Provided that you avoid exposure to the sun, the sweat and the physical effort.

Posted Aug 12, 2017 by Ana 1000
Translated from portuguese Improve translation
Avoid sweating is essential

Posted Oct 1, 2017 by Sonia 1000

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Find people with Hidradenitis Suppurativa through the map. Connect with them and share experiences. Join the Hidradenitis Suppurativa community.

Stories of Hidradenitis Suppurativa

HIDRADENITIS SUPPURATIVA STORIES
Hidradenitis Suppurativa stories
It started in 2003 when I got a pilonidal cyst that had to be surgically removed. For the years after, I would deal with flares starting from my thighs and the back of my neck and eventually around the armpits, breasts and leg creases. I was too scar...
Hidradenitis Suppurativa stories
I've had HS since I was 20, and am now 40.  I also had the pilonidal cyst which is very closely related.  I've been to many dermatologists and GPs without any success. Tried many treatments...  I do finally have it under control at this point. �...
Hidradenitis Suppurativa stories
Had recurring boils during late teens/early twenties. Doctors told me it was clogged hair follicles. Had one doctor lance one and not very gently.  I had first surgery in 2008 on a pilonidal cyst. That doctor didn't mention HS, but he left a hole i...
Hidradenitis Suppurativa stories
It can take forever and a whole lot of stubbornness to get a diagnosis. If you know something is wrong keep pursuing the answers, Dr's have become lazy in their diagnostic skills. Keep looking!
Hidradenitis Suppurativa stories
My story began at the age of 13. I had developed pneumonia. Shortly after getting treatment, I started to develop bumps on my inner thighs as well as my labia and vaginal lips. They were almost like pimples, but larger. They would hurt and pop on the...

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Hidradenitis Suppurativa forum

HIDRADENITIS SUPPURATIVA FORUM
Hidradenitis Suppurativa forum
I have a lifetime experience with this disease.  There seems to be emerging evidence that dairy and nightshade vegetables create the conditions for HS proliferation.    I can demonstrate potato's cause an inflamation two hours later...
Hidradenitis Suppurativa forum
I might be reseaving ribuximab or  immune suppressants for a autoimmune  condition but  can't find out if it would make the HS worse, and I don't see the dermo till 2 weeks after the other doctor who'll decide what treatment to put me ...

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